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Making treatment decisions - new to the forum

Hi, just signed up as I'm looking for some input/support on choosing a treatment option, I have rrms but have been told it's fast acting so I 'shouldn't delay' starting treatment. They have offered me the option of basically anything available (UK) but are pushing towards Tysabri or Lemtrada both of which seem to have fairly terrifying side effect potential.
Would appreciate anyone's personal experiences having taken either of the above and how you actually ...
Read more : Making treatment decisions - new to the forum | Views : 409 | Replies : 9 | Forum : Introductions


Multiple sclerosis drug 'a landmark'

On the news in the UK today
http://www.bbc.co.uk/news/health-38392548
Targets CD20-positive B-cells, which are implicated in the inflammatory and neurodegenerative processes of multiple sclerosis. Not sure about the risks or side-effects.
Read more : Multiple sclerosis drug 'a landmark' | Views : 342 | Replies : 0 | Forum : General Discussion


One good story for Betaseron

Personally I don't take any of the DMD drugs. But a woman I know who got MS about 25 years ago had this to say. She was on Betaseron since she was dxed. She said it was the only thing that kept her out of the hospital. Recently her doctor took her off of it because her latest MRI showed no lesions. She is still somewhat disabled but has no lesions and she hasn't had ...
Read more : One good story for Betaseron | Views : 305 | Replies : 0 | Forum : Betaseron


Waiting for LP results - how long?

I just had a LP about 9 days ago and I'm still waiting on the results. How long did it take others to get results? I have called the neurologist office several times but they just said they'd have the nurse call when the results came in. I had my MRI which showed 3 lesions in the typical MS areas and my blood work was normal. Symptoms include numbness and pins and needles feeling in ...
Read more : Waiting for LP results - how long? | Views : 230 | Replies : 1 | Forum : Undiagnosed


Extreme Exercise and MS symptoms & Q's about Power Plate

Hello Everyone!
I will try to make a long story short here.
I'm a 38 yr old mother of 3, and have worked in the fitness industry for approx 6 yrs now. In those 6 yrs I have been very active and always considered myself to be in optimal shape. I was up until this past yr basically one of the strongest women in my area in competition. I do very heavy Olympic lifts and ...


THE MISSING LINK?

Unknown Soldiers: UVA Discovers Powerful Defenders of the Brain

Please take a look:

https://news.virginia.edu/content/unkno ... ders-brain
Read more : THE MISSING LINK? | Views : 280 | Replies : 0 | Forum : Drug Pipeline


1,250 mls of Prednisone a day

Hi all!

I haven't been on any official treatment for MS yet (I take cannabis oil), but that's it. Anyway...... I'm starting Prednisone today, and I'm only taking it for 3 days.... but the dosage is crazy! I'm taking 25 pills (50mls), everyday, for 3 days. I know it's been known to be taken like that for MS..... but have any of you done that? If you have, can you share your experience of side ...
Read more : 1,250 mls of Prednisone a day | Views : 437 | Replies : 5 | Forum : Drug Pipeline


Symptoms but have to wait 6 months for MRI!

Hello

I'm a 28yr old woman in Canada with 3 young children.
A few years ago I expieranced the right side of my face going numb, first starting with my tongue and lastly up to my eye. I didn't lose control of my muscle and had no droopyness and after all my bloodwork came back they sent me on my way with no answers.. it took 3 weeks for it to un-numb. (Felt like the ...
Read more : Symptoms but have to wait 6 months for MRI! | Views : 275 | Replies : 8 | Forum : Undiagnosed




Streaks of Silver Falling in front of my face

Hello. I am currently in the process of the many tests and slew of doctors appointments to rule out MS.
In the process of all that 3 fractured vertebrae were dicovered. ...so right now I'm trying to get through all of this in order to see if all of these weird symptoms are nerve damage from my back or something autoimmune.
Anyway, my question is...has anyone ever seen silver rain...or snow falling right in front ...
Read more : Streaks of Silver Falling in front of my face | Views : 467 | Replies : 31 | Forum : Undiagnosed


 

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