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Baclofen and Gabapentin combination

I'm secondary-progressive with moderate+ spasticity and have been taking Baclofen for 3+ years now.

I'm on a pretty high dose of Baclofen. During the week (when I'm up for 17+ hours) I take 65 mg split into 4 doses; on the weekend (when I sleep more) I take 60 mg split into 3 doses. I know that the recommended maximum/day is around 80 mg.

The Baclofen keeps things under control most of the time, but ...
Read more : Baclofen and Gabapentin combination | Views : 276 | Replies : 0 | Forum : General Discussion

PointsNorth's Current Regimen

Hybrid DrG / Coimbra / PN Protocol

Methylco/adeno Transdermal B12 spray
MultiB spray
B2 200mg

60Kiu D

Plan to add
Read more : PointsNorth's Current Regimen | Views : 236 | Replies : 1 | Forum : Regimens

Am I Crazy? Or Possible MS? Seeing Dr This Week. Opinions...

Hi everyone. I have been researching MS for about a week now. I have had some symptoms that seems to go along with MS. I have an appt with my GP this Friday in hopes of getting a neuro ref. I don't really know how to start explaining what's been going on but I'll do my best. For starters I'm a 33 year old woman. I have had 4 pregnancies since 2007. all preterm, 1st ...
Read more : Am I Crazy? Or Possible MS? Seeing Dr This Week. Opinions... | Views : 405 | Replies : 13 | Forum : Undiagnosed

am i crazy?

I am reaching out here because I want to see if anyone's had similar experiences.I was misdiagnosed 6 years ago with peripheral neuropathy. And before that pretty much told that I was crazy and should stop wearing tight pants. It started out with a burning sensation in my spine and in my right leg I felt super tired and sleepy all the time and my legs seem to give out on me out of nowhere. ...
Read more : am i crazy? | Views : 289 | Replies : 9 | Forum : Undiagnosed

FDA adds rare brain infection link to Tecfidera label

FDA adds rare brain infection link to MS drug Tecfidera labelling

The death from a serious brain infection of a patient taking Biogen Idec's big-selling oral multiple sclerosis therapy Tecfidera has prompted an update to the drug's label in the US.

The FDA issued a notice describing the case of a patient on Tecfidera (dimethyl fumarate) who developed progressive multifocal leukoencephalopathy (PML), the same condition that caused Biogen Idec's injectable MS therapy Tysabri (natalizumab) to ...

Update on fingolimod Phase 3 trial in primary progressive MS

Novartis announced today that the Phase III INFORMS study in primary progressive multiple sclerosis (PPMS) did not show a significant difference between fingolimod and placebo on a combination of disability measures. The safety results were consistent with the well-characterized safety profile of fingolimod in relapsing MS (RMS)....... Read more -
Read more : Update on fingolimod Phase 3 trial in primary progressive MS | Views : 246 | Replies : 0 | Forum : Gilenya

"Almost" diagnosed

Hello Everyone!

Hope you are doing ok :)

This is my first post here. I will try to make a long story short ;)

My journey began 3 years ago (I was 20 yo) with some mild neurological symptoms (muscle weakness, mostly in left leg and slightly impaired sensation on the left side of my body). I was admitted ...
Read more : "Almost" diagnosed | Views : 281 | Replies : 3 | Forum : Introductions

How to afford medication if on Medicare?

Just a quick question:

My mother is currently taking Tecfidera (240mg CAPS) twice daily (among other medications) for her MS. I'm trying to help her find a Medicare plan online that will cover her medicine without it costing an arm and a leg every month. She is unemployed (thanks to her MS) and single.

As some of you may know, Tecfidera prices are insane. And many Medicare plans I've researched online have her paying over ...
Read more : How to afford medication if on Medicare? | Views : 228 | Replies : 0 | Forum : General Discussion

Waking up terrified, gasping for breath, afraid of being alo


I am 33 y.o., officially dx'd with RRMS in 2008. I am currently physically active, not taking any medication, only vitamins D and B. My biggest problems are emotional (they started long ago but nobody knew about MS at the time). Right now I am often unable to sleep - waking up in the middle of the night in panic, terror, feelings of shortness of breath, urge to get out of the house and ...
Read more : Waking up terrified, gasping for breath, afraid of being alo | Views : 309 | Replies : 1 | Forum : General Discussion


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