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A board to discuss the Multiple Sclerosis modifying drug Rebif

Should I switch to rebif?(Only honest opinions please)

I am 35 with a husband and two children(12 and 16), I've been on copaxone for almost 10 years..But my body is a little tired..of the shot every day..so my doc said to think about Rebif?
Has anyone been where I am? Taking something new is a little scary. I'm pretty healthy with only mild lasting damage from my relapses.
Read more : Should I switch to rebif?(Only honest opinions please) | Views : 3123 | Replies : 4


rebif and emotional disturbance

I want to raise a topic and see if anyone else and/or people close to them have noticed a certain side-effect of rebif.

There was a thread on here a while ago about rebif and depression and also anxiety and panic attacks. This tipped me off to re-assess what I had been observing in a friend who was on rebif and had recently been put on the higher dose. The situation started gradually and since ...
Read more : rebif and emotional disturbance | Views : 5262 | Replies : 12


Problems with Auto-Injector

I have been on Rebif for 2 weeks. Everything has worked fine until last night.

I loaded the syringe into the auto-injector, and as I pulled the cap remover off, the entire syringe went flying across the room (fortunately no one was hurt). OK, just one syringe wasted.

I decided to try a second time, thinking maybe it was user error. The same thing happened again. OK, now I'm pissed, I just wasted two.

I ...
Read more : Problems with Auto-Injector | Views : 2964 | Replies : 4


Injection location and side effects

Anyone find a correlation between the injection location and intensity of side effects?

I am definitely starting to see a pattern. When I inject in my stomach, the next day isn't so bad. But when I inject in my leg, it's horrible - every time.

I'm now at the point where I only inject my leg once a week, on Friday night, because otherwise I wouldn't make it to work the next morning. My poor ...
Read more : Injection location and side effects | Views : 2275 | Replies : 2


surface skin numbness

I noticed about a year ago the surface skin on the outer portion of both my lower thighs went numb after a shot. Two shots actually, one each thigh. I figure I hit a nerve or something. Maybe was a little too low on the leg. Anyone else have this happen? I didn't get to alarmed over it and the feeling is slowly coming back. Been a Ribif junkie for about 3 years now. Lovin ...
Read more : surface skin numbness | Views : 4047 | Replies : 3


Where to buy Rebif?

We are going out of pocket to purchase Rebif 44mcg. We haven't had much luck locally. Can anyone recommend a place to purchase Rebif? Thanks in advance for any assistance.
Read more : Where to buy Rebif? | Views : 3792 | Replies : 4


Faulty syringes

I have had four bad lots of syringes in a row, where the plunger does not go all the way down with the auto-injector, leaving some of the medication behind.

I called Serono and apparently there is an on-going investigation, as this is a wide-spread problem in Canada. And they've known about it for months.

Their only solution was to recommend switching to manual injection. I don't feel ready to do that yet but I ...
Read more : Faulty syringes | Views : 2901 | Replies : 8


Good News

I've been on Rebif for 2 1/2 years. I had a follow up MRI last week (it has been 3 years since my last MRI) and my dr. called and said I had no new lesions. It would appear that the drug is working!
Read more : Good News | Views : 2707 | Replies : 3


Any second timers?

I posted elsewhere that my neuro wants to re-titrate me on Rebif after my liver enzymes come back down. Is there anyone else that has done this? How is it going if so? How long did it take for them to come back to normal? Any info is appreciated!!!
Thanks a bunch,
Kelli
Read more : Any second timers? | Views : 2652 | Replies : 6


Rebif sides after two years

Does anyone still experience flu side effects after being on Rebif for a long time? I started on Avonex and the flu sides were awful at first but they got better over time. After two years on Rebif I still get the flu sides but keep taking it because it's apparently working (MRI was ok this time)
Read more : Rebif sides after two years | Views : 2447 | Replies : 2


 

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