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Tell us what you are using to treat your MS-- and how you are doing.


Here we go , I started doxy on Sat. working up to 200 mgs by yesterday as pharmacy wanted me to work up slowly due to questionable allergy problems to tetracycline as a child.

So far so good, I felt like I was coming down with cold first day and it went away.

I meet with my doctor next week to discuss addition of zithromax, I wrote her a 3 page letter explaining I need ...
Read more : abx | Views : 14528 | Replies : 59

Established/Published Regimens

I'm interested in comparing a number of published regimens to see how they compare and contrast and then study the differences. Meaning, I'm looking for ones that are "publicly out there" and have had a good bit of public scrutiny. I've identified 3 so far:

The one in the Allen Bowling book
The best bet one the Direct-ms website
The one in the Judy Graham book

I'm not interested in ones that are developed by ...
Read more : Established/Published Regimens | Views : 2046 | Replies : 1

Abx sojourn

Ok, here goes, it's time to start a treatment log.

I already keep one on CPn which is mostly for myself. This one I will keep for others.

First, a little about us. J is my husband diagnosed in May 2004. Prior to his exacerbation he had eye floaters (while jogging), numbness in his pinky side of his right hand, interminent color change (for years) and a swallowing issue. All of these were dismissed by ...
Read more : Abx sojourn | Views : 6203 | Replies : 21

Looking for MS/physical-therapy Resort

Does anyone know of a resort environment anywhere that specializes in immersive physical therapy, nutrition, etc. for individuals with disabilities and/or MS specifically? I've been searching online but haven't found anything.

Thanks so much for any tips!!!

-- Paul
Read more : Looking for MS/physical-therapy Resort | Views : 2762 | Replies : 3

Jaded - progress on abx

I am so pleased to hear the progress many of you have made on the abx and other regimes that I thought I'd let you all know how I am doing.

I have been on the abx since August 2005, and took my first pulse of flagyl just after Christmas. My second pulse finished just over a week ago as I delayed it.

In between the two pulses I started to get an intermittent numbness ...
Read more : Jaded - progress on abx | Views : 3266 | Replies : 9

I removed my post

I removed my post
Read more : I removed my post | Views : 2604 | Replies : 0


I was just curious if anyone would kindly post the following information:

MS Stage (RR, SP, PP, B) =

Regimen =

Length of Time on Regimen =

EDSS before Regimen =

EDSS after Regimen =

I want to see if anything is really working. There is so much content on this site it would take a very long time to read all of it.
Read more : EDSS IMPROVEMENT from any REGIMEN?? -- FROM, TOO | Views : 14196 | Replies : 44

Hello All - Where Do I Start?

I am a 45 year old guy diagnosed with MS in 1997. I started Avonex in 1997 and have been taking it nonstop ever since. I am fortunate that I have very limited disability (hands, right leg) due to flareups of the MS in 1996-2000. I have had clear and clearer MRIs since the Novantrone "put the fire out" on MS for now. Still looking over my shoulder as I run this race though. Other ...
Read more : Hello All - Where Do I Start? | Views : 2779 | Replies : 3

Mamahawk's Regimen

Diagnosed with MS after hospitalized for sudden onset bilateral 'gaps' in vision, spinal tap positive for oligoclonal bands, MRI showed 20 lesions on brain, 3 enhancing, one on spinal cord)
Methylmalonic Acid level 575 (normal 80-220)
Negative for Hughes, Lupus, Lyme, Sjogrens

Started Best Bet Diet (Ashton Embry)
Started Supplements: Multi vit (GNC), Multi mineral (GNC w/ many minerals inc. Ca 1000mg/Mg500mg), Ultra Pure Fish Oil (EPA 2200mg/DHA 750mg), EPO 1-300GLA, CoEnzyme Q10 ...
Read more : Mamahawk's Regimen | Views : 18290 | Replies : 81

Help for PattiD

My husband has been on the protocol about 6 weeks, and his progression seems to have increased. His walking seems so tenuous, and his balance has deteriated more. He is falling more.

He quite the Copaxone that he felt was not doing much when he started the protocol. He finished his first flagyl pulse last week.

We are trying to stay positive, but we are fearing this progression will continue. Did anyone have this difficulty ...
Read more : Help for PattiD | Views : 1794 | Replies : 0


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