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Tell us what you are using to treat your MS-- and how you are doing.

Great! All the main pieces are together.

The Roxithromycin, the last of the antibiotics arrived in the post today.

Was going to wait till I had my LP to get a baseline to compare to but it seems like my condition is spiraling downward very quickly. I don't believe I have the luxury to wait for the LP. So I'm going to give the antibiotics a shot tomorrow morning with the intention of arresting the spiral downfall @ least but hopefully much ...
Read more : Great! All the main pieces are together. | Views : 2511 | Replies : 8


What is LDN

Hi everyone I am very new to all of this. I hear alot about LDN but have never really heard what it is. I have a box of Avonex in my fridge and after 2 months still haven't tried it. It cost me $615.00, the Drs. just scared me so much into ordering it and once it got here I started to freak out.

It seems like the side effects could be so hard on ...
Read more : What is LDN | Views : 1884 | Replies : 1


How many DX w/ MS are on the antibiotics regimens

Hello Folks.

I'm new to this board and am looking forward to getting started on the antibiotics regimen but first I need to finish up a few things w/ a drug study for Rituxan that I'm involved in @ Vandy.

So I have a couple weeks before that is over with and thought I'd try to do a little survey to see how many of us DX w/ MS and what type of MS - ...
Read more : How many DX w/ MS are on the antibiotics regimens | Views : 2661 | Replies : 7


My Adventures in MS

Dear LifeontheIce

I just found a message for you answering your question a month ago. I believe I have sasid a few times that I am rether inept on the computer and I really had to laugh at that - I sent it to myself! I very much appreciated your inquiry and apologize for the late response.

The question was about my acquisition of my antibiotics.

My husband is a pediatrician and my regular doctor ...
Read more : My Adventures in MS | Views : 2886 | Replies : 10


My Adventures in MS

MY adventures! I am certainly not alone. This amzing group has life at its worst and best. With such a gathering of minds perhaps I can get a sounding for a dilemma which will just color things up a bit.

In Feb 05 I quit my cholesterol-lowering drug because my liver functions were so high. For a month I was off Rifampin and Doxy and Flagyl, then started again when they went down. Last month ...
Read more : My Adventures in MS | Views : 3087 | Replies : 3


Always an Anecdote

I started writing here in:

"Treating for Chlamydia Pneumoniae - a possible cause of MS"
http://www.thisisms.com/ftopicp-1992.html#1992

Then changed to:

"Anecdote's Personal Treatment Regime"
http://www.thisisms.com/ftopic-600-0.html

Then started this new post:

An overdue update, whilst still waiting for my next MRI scan. I am starting a completely new posting because I seem to spend much of my time directing people to the following information, which can now be found in a separate posting in the Antibiotics section: ...
Read more : Always an Anecdote | Views : 25319 | Replies : 89


My adventures in MS

Hot! I think it is not just the weather though the heat index is over 100 degrees F. I was born in Indiana and grew up in west Texas but day 2 of Flagyl and I am not perspiring, I am sweating! I too have a low body temperature and have been cold all my life. Even in NC where people wear SHORTS in Oct I have on a T- shirt. a turtleneck and a ...
Read more : My adventures in MS | Views : 3982 | Replies : 5


Yoga

I know we all have varying levels of ability, MS or not. But I'm here to tell you. Try yoga. Find a DVD that you like and you can do at home if you're not up for a class.

Personally, I always resist yoga because it seems so "inactive." But I've been feeling so tight and tired lately and this morning, just threw on my beginner yoga DVD. After two 20-minute sessions, I'm relaxed and ...
Read more : Yoga | Views : 3611 | Replies : 8


Katman: My adventures in MS

It was suggested by one of our reknowned elders that I record my adventures here. I was reluctant at first because I am very much a newcomer here but then realized that we all have something different to offer For the last few days, I have wandered around and tasted some of the various flavors. I think I like them all.

One of my favorite things in life is to make waves. Now that I ...
Read more : Katman: My adventures in MS | Views : 2673 | Replies : 5


Better Brain Regimen

A few posts here have mentioned the regimen for MS in The Better Brain Book by Perlmutter.

I recently bought the book. I think its a useful reference. In addition to a discussion of key risks/impacts on brain function and how to minimize, it had a good “glossary” explaining the purpose of several key supplements.

The book has sections on specific brain disorders, including MS (others are stroke, vascular dementia, alzheimers, parkinsons, and ALS).

The ...
Read more : Better Brain Regimen | Views : 1933 | Replies : 1


 

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