Hello,

I am brand-new in this forum. Just today, I FedExed a CD of my brain / spine MRIs to JH, and the rest of my paperwork should be there within 7-10 days. I am crossing my fingers for everything to go smoothly and for my insurance to comply with paying for the protocol.

My stats:
-27 years old, turning 28 next Tues. (on 04/22)
-Have probably had MS for around 2 years, but wasn't ...

Talked to Carrie today, she said she will call me back next week to let me know if I am a good canidate. Carrie said since they are doing this off label they are treating people who they feel will benefit the most.

Waiting is the hardest part. :(

So say hi if you want. He is expecting some of you to say hi! The IPOP nurse staff and Dr. Brodsky's staff told him to expect it as well.

Peace

can you have the treatment done off-label at any hospital or only at john hopkins
thanks shell

Exactly how I feel. Just had to say I'm in the hotel.

That's it, I'll talk to you in a month.

Wife is updating my site daily.

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Just wondering how much the treatment costs at JH for people with uncomplying insurance companies ?

Regards

Sandon

It was quite the experience.

We met with Dr Hammond initially who had a much clearer picture of Mel's status than her own neurologist.

We'd brought the mri's on a CD so he took them away for ten minutes or so. Prior to that he gave Mel a bunch of tests with some surprising (and disappointing) results.

Carrie then came in and introduced herself. She's great.

Then Dr Hammond came back with the famous Dr ...

I am curious why some are choosing revimmune over Stem Cell therapy.
I am currently deciding between the 2. I have had MS for about 15 years with an EDSS of 1.5

I see my neuro this thursday and want to discuess how I can get into one of these studies. Where I live they are doing the Stem Cell Therapy, sounds pretty much the same as the revimmune except one you get stem cells ...