This Is MS Multiple Sclerosis Community: Knowledge & Support

**Posted:** Mon May 03, 2010 11:26 pm

Well, this board is mostly "dead" now...but figured I'd drop a quick update in case anyone ever stops by.

This week marks 1 year since I underwent a second course of HiCy. (first round 7/08, second 5/09). In this past year, I have not had symptoms or relapses.....prior to this, I had relapses every 2-3 months since being diagnosed 28 months ago.

I used Copaxone from June through February. I discontinued Copaxone because I was ...

**Posted:** Tue Apr 27, 2010 6:29 am

because i have a brain stimulator, chicago will not accept me. I qualify in every other aspect.

They shoould haave done more research, because theree is a protocol for a CT-Scan thatt can show the lesions of MS.......Now I try the Mayo Clinic in Florida or the Cleveland Clinic.

AJ

**Posted:** Tue Mar 30, 2010 12:51 pm

My fiance is probably going to end up doing this. Has anyone here done it? Or is this Hici the same thing? Please let me know the side effects as you experienced them. I just want him to be OK. He'll do it, but I need to be prepared for what's to come. He is getting sicker and I am so scared of losing him its been messing with me in horrible ways. Please let ...

**Posted:** Tue Feb 23, 2010 3:43 pm

plain and simple - HOW DO I GET HICY?

**Posted:** Wed Feb 17, 2010 3:03 pm

Just asking for prayers for I will be in Chicago on Monday for my consultation to get HiCy.

Thanks everyone and I wall let you all know, maybe before I come home on the 25th. I think my laptop comes tomorrow!

**Posted:** Sun Feb 07, 2010 1:44 pm

I am a friend of Chris who has sat in the corner watching how Revimmune and how CSVI is working. I don't really know how to post but I am going to give it a try. I've watched long enough. I may never do it again I don't know. You people know much more about MS than me I am not sure I could hold down the conversation.

The level of disrespect given by some ...

**Posted:** Fri Feb 05, 2010 5:33 am

I hust saw this article:

<shortened url>

**Posted:** Tue Jan 26, 2010 9:33 am

2 years out. No lesions in 2 years. MRI yesterday clean with more lesion healing. No disease progression in 2 years.

**Posted:** Sat Jan 16, 2010 8:04 am

I received a letter telling me that my next three appointments have been rescheduled with a different doctor so I called and was told he's taking a job doing pure research. His assistant emailed me and told me that he's headed up to Boston. I wish him well. He's been such a great guy and I hope he cures this stuff and we walk normally again and he gets a Nobel. He's really the only ...

**Posted:** Wed Dec 16, 2009 5:04 am

G'day all ..deluxe here..

long time aussie lurker here with no official dx.

( limboland they call it I think )

Anyway I read this article in local abc news, this guy had some pretty good results, shame you have to be almost dead to recieve it .

From reading the article I think he was treated on compassionate grounds.

The poor guy was 20 and almost died. Good on him for getting this treatment. ...

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