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A board to discuss Revimmune as a potential therapy for multiple sclerosis

Symptoms

im headed down to the Mayoclinic in FL. in June to see a neuro about HiCy. I hope and pray I get it.

now i know everyone is ddifferent, on average how long did it take for you guys to see relief in ur symptoms?

AJ
Read more : Symptoms | Views : 2017 | Replies : 2


1 yr post HiCy (2nd round)...Great news!

Well, this board is mostly "dead" now...but figured I'd drop a quick update in case anyone ever stops by.

This week marks 1 year since I underwent a second course of HiCy. (first round 7/08, second 5/09). In this past year, I have not had symptoms or relapses.....prior to this, I had relapses every 2-3 months since being diagnosed 28 months ago.

I used Copaxone from June through February. I discontinued Copaxone because I was ...
Read more : 1 yr post HiCy (2nd round)...Great news! | Views : 2667 | Replies : 6


DENIED BY CHICAGO

because i have a brain stimulator, chicago will not accept me. I qualify in every other aspect.

They shoould haave done more research, because theree is a protocol for a CT-Scan thatt can show the lesions of MS.......Now I try the Mayo Clinic in Florida or the Cleveland Clinic.

AJ
Read more : DENIED BY CHICAGO | Views : 2217 | Replies : 2


cyclophosphamide for MS

My fiance is probably going to end up doing this. Has anyone here done it? Or is this Hici the same thing? Please let me know the side effects as you experienced them. I just want him to be OK. He'll do it, but I need to be prepared for what's to come. He is getting sicker and I am so scared of losing him its been messing with me in horrible ways. Please let ...
Read more : cyclophosphamide for MS | Views : 5716 | Replies : 28


How Do I Get It????????

plain and simple - HOW DO I GET HICY?
Read more : How Do I Get It???????? | Views : 2070 | Replies : 3


GoodBye Tysabri Hello HiCy?

Just asking for prayers for I will be in Chicago on Monday for my consultation to get HiCy.

Thanks everyone and I wall let you all know, maybe before I come home on the 25th. I think my laptop comes tomorrow!
Read more : GoodBye Tysabri Hello HiCy? | Views : 2241 | Replies : 3


Chrishadms you tube video and facebook video

I am a friend of Chris who has sat in the corner watching how Revimmune and how CSVI is working. I don't really know how to post but I am going to give it a try. I've watched long enough. I may never do it again I don't know. You people know much more about MS than me I am not sure I could hold down the conversation.

The level of disrespect given by some ...
Read more : Chrishadms you tube video and facebook video | Views : 2871 | Replies : 11


HDC news

I hust saw this article:

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Read more : HDC news | Views : 2012 | Replies : 3


UPDATE FOR REVIMMUNERS

2 years out. No lesions in 2 years. MRI yesterday clean with more lesion healing. No disease progression in 2 years.
Read more : UPDATE FOR REVIMMUNERS | Views : 2366 | Replies : 2


Anyone heard Dr. Kerr is leaving Hopkins?

I received a letter telling me that my next three appointments have been rescheduled with a different doctor so I called and was told he's taking a job doing pure research. His assistant emailed me and told me that he's headed up to Boston. I wish him well. He's been such a great guy and I hope he cures this stuff and we walk normally again and he gets a Nobel. He's really the only ...
Read more : Anyone heard Dr. Kerr is leaving Hopkins? | Views : 2179 | Replies : 2


 

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