This Is MS Multiple Sclerosis Community: Knowledge & Support

I am trying to get info on Novantrone & LDN, does anyone know of anyone or anyplace to find info on the aspects of these two and thier interaction?

The person I care for has had 3 treatments of low dose Novantrone, and we are now going to stop this toxin and try LDN, what I am wonderin is if the results of the Novantrone and what it does to the body are long lasting and how long it might be in system, we were told at the hospital by a nurse that Novantrone flushes itself from the body in just a day or so? Didnt make sense to me , but that is what she said..

There have been no improvements while Kathy has been on the Novantrone, and I for one, after weeks of research in LDN firmly believe it will do more than anything we have tried in over 7 years, and we have tried all "prescribed" treatments..

We will put our trust in all the positive posts from people who actually are taking LDN..

I have also reseached diet and MS and I am now wondering if someone who is on LDN, once the body has normalised to the treatment , if a common sense healthy diet might even make the results better, of coarse we all know a good diet can help everyone , but perhaps in this case it would be even more helpful..

I HAVE DONE A LOT OF RESEARCH ON THIS AND THEY DO NOT GO TOGETHER. THE MEDICATIONS COUNTER-ACT EACH OTHER. THE DR. SHOULD HAVE TOLD YOU THE NOVANTRONE DOESN'T WORK UNTIL YOU HAVE AT LEAST 6 TREATMENTS. IT IS NOT A MIRACLE DRUG, QUITE THE CONTRARY, IT IS SUPPOSED TO STOP FURTHER DETERIORATION. I AM ON MY 7th TREATMENT AND I AM STABLE, SO, THE DR.'S SY THAT IS GOOD. I HAVE A VERY AGGRESSIVE SPMS, SO, I SUPPOSE THEY ARE RIGHT. I AM WAITING FOR ANTEGREN TO BE APPROVED OR STEM-CELL, WHICHEVER COMES FIRST. INFO ON LDN IS ON A LOT OF WEB-SITES. A GOOD ONE IS www.voy.com AND www.ms-cam.org. MY INFO CAME FROM MULTI SOURCES, A DR. M. R. LAWRENCE, ON THAT WEB-SITE AND MY OWN DRS. STAY WELL, VIKKI

Hi Vicki

I was interested in reading your message because my daughter who also has very severe and aggressive SPMS has just had her third injection and so far no results (at least no positive ones??). Her doctor told her that it takes 3 shorts before an effect is shown but you say 6. When did you start to feel the effects and how??

Many thanks.
Lap

I read your post and thought that it might be useful to post my experience.
I am 62 and have polio (legs) since childhood. DX with SPMS in July of 2004.
Started Novatrone 10/11/04 along with LDN 4.5 mg.
I have gone from being too weak to lift a cup of coffee on most days to being able to reasonably take care of myself on a daily basis.
My Doctor and I agreed to try both meds together and for me to keep a daily log charting the results.
While the meds are generally not recommended to be used combined, the Novatrone chemical treatment is out of your body in a very short time frame.
I have experienced no negative reactions from this combination of drugs other than a slightly sick feeling in the stomach for 48 hours after Novatrone treatment along with a very minor hair loss.
My next Novatrone treatment is scheduled 1/7/05 but if I continue to progress I might not have the second treatment of Novatrone.
My Doctors opinion was that I would not improve my weakness with either med due to my stage of MS but this has not proven to be true.
The use of LDN was at my request and I think that it is the major reason for my improvement.
I tried Provigil to help with the weakness and it did not work very well so I changed to Amantadine and it did help.
LDN and Amantadine are the only drugs I use.

I wish you the best,

Ray

Ray, you have shared a very valuable story that will be extremely helpful to others. I thank you on behalf of the community.

And I am so very happy that you are improving! Strong wishes for continued benefit!

Hi,

I've been taking LDN for around 6 months, and I've been taking a chemo drug, Cyclophosphamide, for about one month (I had an intense burst of 5 treatments in 8 days, now it will be once every couple of months).

The thing that needs to be remembered is that, at least a few months ago, LDN had not undergone any clinical trials for MS, so the notion that LDN should not be combined with this drug or that drug is based on theory, not on what actually happens in the body, which could easily be more complex.

From my experience, though, taking LDN, chemo, other supplements/diet modifictions, there does not seem to be any interaction.

As for how long the drug stays in the system, my hair started falling out last week, almost three weeks after my last infusion of chemo. It might be the case that there is no more Novantrone in the person you care for's body, but it probably continues to do its work for a couple of weeks after the drug is gone.

Cheers,

Craig