Hi all, glad I found you guys. It has been so hard to find these sort of site for kids with MS.
Back in July, my son was put in the hospital for stomach problems. While there he started seeing double. 1st MRI was done and did show lesions. He then was sent to a childrens hospital. They then did a spinal tap and more labs. He then was DX w/ Encephamylitis(sp?) said possaible MS, but watch and wait. Then he started with more severe headaches in Sept. another MRI was done and I got that God aweful call this past Wednesday. My son that will only be 9 on the 23rd does have MS.
He is to see the Dr. again on the 25th. They are talking about starting the avonex then.
so far, I am having a hard time telling what is a normal 9 year old, growing up and going through alot and symptoms of MS. He does have alot of problems going #2 and headaches, he takes topamax now. He also has ADHD. He has been moody, and seems a little depressed since July. But when I talk to him he says nothing is wrong.
He knows he was sick in July and he knows we have been testing, but he swears he is fine. So I havent talked to him about it yet. Any tips on how to talk to him about having MS and starting weekly shots?? He has always been so scared of shots( me too) Also I do not want to scare him about theses aweful things that may or may not happen to him. I do not want him to watch and wait or be scared out of being a little boy. Please send any tips my way. Thanks so much.