Since I asked for this forum, I better introduce myeself.
I'm 34 years old, I was diagnosed in 2002, had my first child in 2006, a boy that is now 4 years old, and my second child in 2007, a little girl that is now 2. When I decided to have kids, I was doing fairly all right. I ahd been ill for some years, but did not have much bother. Thinking my prognosis was pretty good, not fully realising the impact this disease of ours could have on my life.
I think the biggest challange of beeing disabeled is fetching up kids. They get sad, and my eldest is even a bit worried about me. Questions I ask myself is how much should I involve them, how much info do they need. They do wonder why I can't play with them, they don't understand this about good days and bad, when they are this young. And I suppose as they get older, we will face different challanges. They migth be scared and worried, embarassed, sad etc.
Now the biggest struggle is practical problems, how to arrange the day, as they are depending on me for daily care, later on it might be more a financial question as they get more expencive as they grow up, with the wants and the demands of todays children, we have suddenly become a one income family. How best communicate with them, what to say and how much to explain I think is the big question.
How much to involve them, but not putting stress on them, and give them to much responsibilities, that will steal away their childhood. How to find the balance.
Just thinking it could be nice to talk with others about things as thing come up.
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>