My son is three now, he's very inquisitive and always asking why mammy?
He sees me take my injections each day, vitamins and meds and he hasn't really questioned it much, I just said it's to keep me well. Recently we were out though, I had a good day and decided to take him on the bus. Normally I drive because it's easier for fatigue and balance. We got on the bus and he kept asking me why I wouldn't go upstairs (because Daddy does!). I just said I couldnt' manage the stairs on the bus. Then when he saw another woman go up the stairs he shouted 'but SHE can manage Mammy, she can manage the stairs!!'. I just said, well I can't. More why's but I just kept saying, 'I just can't'.
But it has me wondering, how early have the rest of you parents said 'I have MS' to your children? I am not sure it would be a good thing to tell him until he's older as he is full of questions about 'how do you die' 'why do people die' 'do they die when they get sick' etc etc. so it might worry him that if I'm 'sick' I might be about to die!
Anyone share their 'I have MS' stories with your children?
RR-MS dx 1998 and Coeliac dx 2003
Tecfidera, Cymbalta, Baclofen.
EPO, Fish Oils, Vitamin D3 2000 IU, Magnesium, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle, Melatonin.