I am new to this dx & site. I'm a 40yr mom to 2 preschool boys. Went in to have my appendix out 3 weeks ago- came out with the MS diagnosis a few days ago after a HORRIBLE hospital stay.
I am currently sick with a respiratory virus & having an "exacerbation". My weight has dropped 20 pounds in a month (I am down to 105 pounds). I was suffering from horrible constipation, so I stopped eating solid food.
My "exaxerbation" (sorry I keep putting that in quotes, but I still have trouble accepting all this...need a few more days? ) symptoms are: weak, non co-ordinated legs right worse then left, facial numbness, righ arm numb, abdomen completely numb & barely functioning, spastic bladder, severe fatique, blurred vision- was told I had brain lesions, but NO spine lesions so I don't understand all the symptoms?
My question.... should I start the Rebif now when I am so run down already or wait for when (if) get some health/stregnth back?
While I understand Rebif does not improve symptoms doing nothing during this deterioration is leaving me & hubby with a feeling of being completely at the mercy of the disease. We haven't even been able to get into a nuerologist yet- we were just sent home with directions to start Rebif. We don't even know if I have a progressive form or another type. We don't know if this is going to get worse, better, stay the same....I guess that's the disease though hey?
Thanks for any advice