ok-rebif?? that's is

A board to discuss the Multiple Sclerosis modifying drug Rebif

ok-rebif?? that's is

Postby Andie » Fri Jul 16, 2010 6:42 am

do you like these meds?
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Postby carolsue » Fri Jul 16, 2010 12:56 pm

Do I *like* these meds? Of course not. But am I satisfied with my decision to choose this med instead of others? Yes.

I *like* only having to take it 3 times a week instead of every other day or daily. I don't have the side effects that plague many others, and my disease doesn't seem to have progressed any since I started 6 years ago. But the injections are painful for me and I'm getting a little tired of that
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Postby Andie » Fri Jul 16, 2010 1:01 pm

your are right- poor choice of words-- but I knew my friends here would understand what i meant

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Postby oreo » Fri Jul 16, 2010 1:32 pm

Andie, like carolsue I have been on Rebif for many years. In that time I have had no major relapses, just monor short-lived issues now and then.

carolsue, I rarely find the injections painfull. Just how do you inject?
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Postby Bubba » Fri Jul 16, 2010 6:58 pm

Given the choices? Yeah, I will stick with the Rebif. 3x a week and thats it. Also, since I have been on it I have had no relapses nor any side effects/
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Postby dignan » Sat Jul 17, 2010 7:54 am

Same for me: don't like it but am satisfied with my choice as I've had no relapses and have no side effects after over 6 years on the drug.
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Postby jgkarob » Sun Jul 18, 2010 2:32 am

Like the other respondees, I don't like that I have to take it, but I'm very grateful that it's worked.
10 years this year and no horrible flu-like side effects, just injection site marks. As I'm not (and never will be) an underwear model, this isn't a big issue for me.
xx
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Postby Bubba » Sun Jul 18, 2010 6:07 pm

jgkarob wrote: As I'm not (and never will be) an underwear model, this isn't a big issue for me.
xx


LOL... I know where your comming from! :D
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Postby carolsue » Fri Jul 23, 2010 8:38 pm

oreo, it doesn't seem to matter how I inject but 9/10 times it hurts. and I do get the injection site reaction marks, but they don't hurt so I ignore them. I've read all the advice here and elsewhere. I do warm the syringe up to body temp first, and I think that lessens the pain, but it's still painful. sometimes I use the autoinjector, sometimes I do it manually. when I do it manually, I can control the pain by doing it really slowly, but it still hurts. Injecting the fleshiest part of my butt is the only time it doesn't hurt, but I have to rotate injection sites, so...
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