PPMS and Rebif

A board to discuss the Multiple Sclerosis modifying drug Rebif

PPMS and Rebif

Postby orphansparrow » Wed Jul 20, 2016 12:34 pm

Hi there,

My husband was diagnosed last week with what the neurologist believes is PPMS. But she also prescribed Rebif to him, which she wants him to inject 3x a week.

I was under the impression that Rebif is for RRMS patients. Is there a reason someone with PPMS should take it?

We go see her again in a couple days, and have decided to not start the Rebif yet. I want to make sure its the right decision.
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Re: PPMS and Rebif

Postby jon123 » Thu Sep 08, 2016 11:49 pm

orphansparrow wrote:Hi there,

My husband was diagnosed last week with what the neurologist believes is PPMS. But she also prescribed Rebif to him, which she wants him to inject 3x a week.

I was under the impression that Rebif is for RRMS patients. Is there a reason someone with PPMS should take it?

We go see her again in a couple days, and have decided to not start the Rebif yet. I want to make sure its the right decision.


It might be the case when there is no other alternative is suitable.
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Re: PPMS and Rebif

Postby HUD45 » Mon Nov 21, 2016 9:47 am

I have PPMS and was offered some of the CRAB drugs to try for effect.. I declined due to the side effects were probably worse than the benefit. Everyone is different though and has to decide for themselves.

Still looking for individual testimonials for Ocrevus (ocrelizumab)

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