This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Tue Jun 18, 2013 7:19 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 9 posts ] 
Author Message
 Post subject: I'm being bad
PostPosted: Mon Mar 24, 2008 2:59 pm 
Offline
Family Elder
User avatar

Joined: Tue Mar 06, 2007 4:00 pm
Posts: 161
Location: Toronto, Canada
I decided to stop taking my Rebif. Tonight will be my first missed shot. :twisted:

My neuro wanted me to go for three more months, and I've lasted two. Screw it, I have a crazy month ahead of me work-wise, I am d.o.n.e.

I packed up my auto injector and supplies and stuffed them in the very back of my closet. I truly hope to never see them again. :D :D :D


Top
 Profile  
 
 Post subject:
PostPosted: Mon Mar 24, 2008 5:05 pm 
Offline
Family Elder
User avatar

Joined: Sat Sep 29, 2007 3:00 pm
Posts: 133
Location: Charlotte, North Carolina
Punchy,

Is this permanent or a "vacation". What was it that led to your decision? Side effects? And what was it your neuro expected to see after three more months? I'm on Rebif myself so I'm really curious.

Jack

_________________
RRMS since 01/07.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Mar 24, 2008 5:33 pm 
Offline
Family Elder
User avatar

Joined: Fri Jun 04, 2004 3:00 pm
Posts: 163
Location: Canada - Ontario - South-West
Thanks for reminding me - I was forgetting today's shot.

I am also interested to know why you are quitting. I will skip the occasional shot because it is not convenient but I wouldn't dream of stopping. Things are going OK for me and I don't want to take any chances.

_________________
Carpe Diem


Top
 Profile  
 
 Post subject:
PostPosted: Tue Mar 25, 2008 2:31 pm 
Offline
Family Elder
User avatar

Joined: Tue Mar 06, 2007 4:00 pm
Posts: 161
Location: Toronto, Canada
I am stopping because in 3 months we're going to try to start a family :D.

I've had a miserable time on Rebif and wanted to quit two months ago, but my neuro convinced me to do it for three more months (we aren't planning to start trying until August).

That all said, I had a major relapse this weekend. :(
Felt funny all weekend then last night was hit by full-on vertigo and subsequent vomiting. I had a lesion on my brain stem last year that caused the same thing. I am going in to the hospital tomorrow. Boo.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Mar 25, 2008 3:20 pm 
Offline
Family Elder
User avatar

Joined: Sat Sep 29, 2007 3:00 pm
Posts: 133
Location: Charlotte, North Carolina
Punchy,

That sounds all to familiar, exactly how my first exacerbation went. The vertigo is like being a human helicopter. I feel for ya.

Jack

_________________
RRMS since 01/07.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jun 16, 2008 8:56 pm 
Offline
Family Elder
User avatar

Joined: Tue Aug 01, 2006 3:00 pm
Posts: 169
Location: S. California
Best of luck with that. I HATE rebif too, but I am too scared to stop. I also am doing an antibiotic protocol for giggles just to ensure that I never have a day whenI do not feel absolutely horrible. Congrats on trying to start a family. I am scared to do that as well. You have more balls than I apparently. I long for the day I can put all the interfeuron gear into a bonfire..... I had wicked Vertigo too. ..for at least 1-2 weeks. That SUX. Get well....G


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jun 17, 2008 9:17 am 
Offline
Family Elder
User avatar

Joined: Tue Mar 06, 2007 4:00 pm
Posts: 161
Location: Toronto, Canada
I can't tell you how good it felt to throw all my interferon stuff into a box and shove it to the back of a closet. Then I squirted out six syringes of Rebif into the sink while having a glass of wine. :D

I kept three syringes, which I place front in centre of my fridge and with me when I travel, to fool my friends and family (it's all a big secret).

I do have moments of paranoia though. I just pray i get pregnant sooner rather than later.

And I'm not brave, just largely in denial.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jun 17, 2008 7:34 pm 
Offline
Family Elder
User avatar

Joined: Tue Aug 01, 2006 3:00 pm
Posts: 169
Location: S. California
I'll take a few glasses of wine over that Rebif crap anyday. I can see the smile on your face while squirting that rebif acid stuff down the drain and having wine... nice. I hope it was a nice red wine..my favorite.

Best Regards


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jun 17, 2008 7:36 pm 
Offline
Family Elder
User avatar

Joined: Tue Aug 01, 2006 3:00 pm
Posts: 169
Location: S. California
OOps..I see from the getting pregnant line that you must be a woman. Funny, you still have more balls than me..ha. Enen if it is denial talking...


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 9 posts ] 

All times are UTC - 8 hours [ DST ]


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of personal Multiple Sclerosis stories on Experience Project. Experience Project is an anonymous community where people connect through their life experiences, made by the same people who built This is MS. With over 30 million personal stories about every possible life experience, you can quickly find people like you!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers

Advertise on the premier multiple sclerosis forum