I am just asking......

A board to discuss the Multiple Sclerosis modifying drug Rebif

I am just asking......

Postby anita » Thu May 29, 2008 10:48 am

Hi everybody....

I am very interesting.....when does rebif take effect (after how many time). I mean, do you have any improvement, or how long does it take to notice any improvement...if there is any.....
:cry:
Hope you are not angry about these questions.... :)

Thanks for your reply, and have a nice day.....



Sorry, my language is not very good...


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Postby carolsue » Fri May 30, 2008 2:04 pm

Anita,
Your language is good enough.

When I started taking Rebif I did not have symptoms, so it is not easy to guess when it started working. About 4 months later, I had some very minor numbness that lasted a week or two. Since then, no symptoms at all. I have been free of symptoms for at least 2 years. So from my experience, I might guess that it takes at least 4 months to reach full effectiveness.

I do think it took 6-8 months for my body to adjust to Rebif. I had elevated liver enzymes in my blood tests about 6 months after starting. They returned to normal soon after that.

Maybe others will have more direct insights from their experience.

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Postby anita » Sat May 31, 2008 10:14 am

Carolsue,

I am wery happy, that you reply... :D

Now I am on rebif for two months, just week ago, I started with rebif injektor...........

You know, there are many, many questions, when you are sick, and you want things change....and you just wait and wait for improvement...


So once again, thanks for your answer and have a nice day full of sunshine... :D
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Postby VodooDoll » Sun Jul 13, 2008 5:55 pm

I've been on Rebif for 6 weeks now. (Had taken Copaxone previously for 13 months with 3 relapses in those 13 months.)

From what the MS Lifelines nurse told me, it takes about 4 months to have your body ramp up being fully "dosed".

Even being only on it for a few weeks, I've already notice some improvement in my MS symptoms.

Good Luck :D
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Postby anita » Mon Jul 14, 2008 9:40 am

VodooDoll,

thank you very much for your reply. I belive, that Rebif will also improve my situation... :)
I have troubles with my left leg and they are still present, that upsetts me.
Before that I didnt take any medicament. I take now Rebif for three months, and hopes on improvement...

Wish you good luck and a lot of sunshine...

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Postby Damjan » Mon Jul 14, 2008 10:35 am

Let me just say hello to you (we are from the same small country):


Lepo, da si se opogumila tudi tukaj na precej bolj globalnem forumu.

Glede rebifa ti žal ne morem pomagati, ker nisem na nobenih injekcijah - kljub težavam.

Od tu naprej se pogovarjamo pa na domačem terenu ;) - msforum.


So much about my slovenian accent ;).
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Postby anita » Fri Jul 18, 2008 10:58 am

Also thanks to you Damijan, for reply (when I first saw you post, I think, you where talking about temporary paralysis, I just know it was you - from our small country :wink: ).


Hvala, da si se oglasil tudi tukaj, se beremo na domačem MSforumu.... :D


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Postby bebe » Thu Jul 31, 2008 6:26 pm

Hello all-

In the studies, it takes 2 months for Rebif to show a dramatic effect on MRI lesions. Thats really the only thing that can be measured objectively. In terms of clinical measures, like relapses, that is going to vary by each individual. Remember though, the DMD's dont help "regain" anything...they help prevent futher loss. However, some patients that I work with do report improvement and that is always positive.
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Postby anita » Mon Aug 04, 2008 11:50 am

Thanks to you bebe for news....


have a nice day,

Anita :)
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Postby haywood » Thu Aug 28, 2008 2:39 pm

What about coming from a different medicine? I was on Avonex for about 3 months and then had my first relapse I then switched to Rebif I have been on this for 1 month and still not getting better.
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Postby chicca » Wed Sep 10, 2008 5:32 am

bebe wrote:Hello all-

In the studies, it takes 2 months for Rebif to show a dramatic effect on MRI lesions. Thats really the only thing that can be measured objectively. In terms of clinical measures, like relapses, that is going to vary by each individual. Remember though, the DMD's dont help "regain" anything...they help prevent futher loss. However, some patients that I work with do report improvement and that is always positive.



Hi babe. I'm new to this forum and I'm italian (so I don't speak english very well). I was wandering what "DMD" means because I couln't find it up in a dictionary. Than you very much and sorry for the stupi question

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Re: I am just asking

Postby NHE » Wed Sep 10, 2008 3:45 pm

Chicca wrote:Hi babe. I'm new to this forum and I'm italian (so I don't speak english very well). I was wandering what "DMD" means because I couln't find it up in a dictionary. Than you very much and sorry for the stupi question

DMD = Disease Modifying Drug (which is shorthand for "it isn't a cure but it might help").

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Postby chicca » Wed Sep 10, 2008 11:14 pm

thank you very much! :D
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