Hot flashes and Rebif

A board to discuss the Multiple Sclerosis modifying drug Rebif

Hot flashes and Rebif

Postby catfreak » Sat Aug 02, 2008 6:32 am

Does anyone else have this problem?

I went to my GYN for checkup and had them do blood work for pre menopause or menopause. They called to say my hormones were no where near even pre menopause. So it must be the Rebif. I go to my neuro on the 11th so I can share the news and see what he says.

These hot flashes are horrible. They drain all my energy. MS Lifelines nurse says this may be my Flu symptom and to keep taking the Tylenol. I worry about taking so much tylenol and liver damage.

What does everyone else think?

CF
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Re: Hot flashes and Rebif

Postby NHE » Sat Aug 02, 2008 9:13 pm

catfreak wrote:MS Lifelines nurse says this may be my Flu symptom and to keep taking the Tylenol. I worry about taking so much tylenol and liver damage.

If I remember correctly, you can take n-acetyl cysteine (NAC) along with the Tylenol to help minimize and potential for liver damage.

NAC is a precursor for glutathione which is an antioxidant that gets depleted due to binding with the metabolic break down products of acetaminophen.

NHE
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Postby VodooDoll » Sun Aug 03, 2008 5:34 pm

I started taking Advil 3 hours prior to my shot, found it works better than Tylenol for me.

I get those mystery hot flashes as well. Not sure if they are the rebif or menopause...but I'm just burning up! I get night sweats and tear the covers off at night, then get chilly and cover back up - everynight- not just my shot nights.
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Postby catfreak » Mon Aug 04, 2008 6:25 pm

Voodoo,

I do this several times a day. I have cut my hair short since it was burning me up. It's very embarrassing to sweat like this. When I get really hot it take all my energy and I am zapped for 2 days.

I can't take advil it hurts my stomach. Tylenol only.
CF
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby VodooDoll » Fri Aug 08, 2008 5:10 pm

Catfreak,

I've cut my hair as well. A co-worker who went through menopause last year told me to start charting anytime I have a period - even spotting. She said once you haven't had a period (spotting doesn't could unless it's more than two days) for one year the hot flashes should stop within about 5-6 months.
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Postby Punchy » Thu Aug 14, 2008 1:34 pm

Oh man, the hot flashes. I suffered terribly from these throughout the day and especially during the night, when I would burn with fevers so bad I would get the shakes and cold sweats. Sometimes my body would heat the bed up so much my husband would go sleep on the couch!

I did take advil extra strength and it helped somewhat but I was constantly plagued by them for the 11 months I was on Rebif. :?
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