Numbness

A board to discuss the Multiple Sclerosis modifying drug Rebif

Numbness

Postby siren » Wed Jul 08, 2009 8:15 am

Hi all,

Just wondering if any of you have experienced a 'numbness' or 'pins/needles' sensation on parts of your body? I'm experiencing these at the moment on the right side of my body...the face, legs and arms.

I've asked for advise from my neuro abt this and his reply was that if it doesn't restrict me from doing things then there's no need to take steroids. He said that it should go away gradually. He added that this might be a small relapse, and not all relapses need to be treated with steroids as some recover spontaneously.
For those who had experience this before, do let me know if it would go away after some time? I never had this kind of relapse before. It makes writing very uncomfortable and I'm worried that if I don't do something abt it (like taking predisolone), the sensation might be permanent
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Postby dignan » Wed Jul 08, 2009 8:30 am

Hi siren, sorry to hear about your situation. My first episode was numbness/tingling that started small and spread over my whole body. I didn't get any treatment for it and it resolved on its own. My understanding of steroids is that they speed up the healing process, but they don't make the healing more complete than it would be without the steroids. Hope that helps a bit.
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Postby siren » Wed Jul 08, 2009 8:40 am

Thanks Dignan! It does help! I'm more assured now that this tingling feeling should go away after sometime. I'm gonna observed it for awhile. If it does not get any better, then I'm gonna need the steroid.
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Postby Bubba » Wed Jul 08, 2009 7:19 pm

Not to be rude but... I get numbness/tingliness in my right butt cheek, and it makes me walk funny. Happens quite often.
Last edited by Bubba on Thu Jul 09, 2009 10:29 am, edited 1 time in total.
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Postby Karazhan » Wed Jul 08, 2009 9:04 pm

Bubba,

I gotta be honest with you, that post made me laugh. Granted there's nothing funny about MS and I'm very sorry for you but picturing you walking around with a numb butt cheek is just funny, I don't care who you are. :)

As to the subject at hand, mine started out as tingling in my right foot then progressed to numbness (just in certain areas of my foot). Over the years, the numbness now affects my entire right foot, up my leg, to about mid-calf.
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Postby catfreak » Wed Jul 08, 2009 9:52 pm

Bubba said:

Not to be rude but... I get numbness/tingliness in my right butt check, and it makes me walk funny. Happens quite often.



I did it too Bubba, I laughed out loud. Really loud.... Sorry dude...

I get numbness anywhere from my toes to the top of my head at any time day or night.

Don't know why but it just comes and goes at will.

Cat
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9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby Bubba » Thu Jul 09, 2009 10:31 am

Heck, I laugh myself... Think about it for a minute :lol: your trying to walk and your butt cheek starts with the pins and needles. Makes ya walk kinda funny :lol:
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Postby siren » Fri Jul 10, 2009 7:40 am

the posting replies abv made me smile :) !
FYI, I'm gonna start taking start taking predisolone (60mg) tomorrow as the numbness has started affecting my movement :( ...I'm not able to write properly now. It has been a week now since this episode begins and it's not getting better. I think it's time to hasten the recovering process before things gets worse. This is the second relapz that I'm having this year..! I guess the reason of the frequent relapzs is that I had cut down Rebif to twice a week from Feb - May. I'm back to 3 times a week now after I got my first relapz in Jun. I thought by cutting down , I could save some Rebif cost...
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Postby catfreak » Fri Jul 10, 2009 8:51 am

Siren,

Do you have to pay for your Rebif out of your own money?? Oh my gosh, it is so expensive.

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Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby siren » Fri Jul 10, 2009 7:16 pm

Yup, I'm paying it out of my own pocket.... all S$2,100 of it or approx US$1,435.83 every month. :( ...can't fault me for trying to cut the cost of Rebif expenses. Had been trying to get susbsidy wif all avenues here but no success...it's like trying to squeeze water out of a rock ! I have resign to paying it all by myself :cry: I could still manage the cost but barely...it swallowed up nearly all of my pay. I just hope that i don't loose this job with all the frequent relapes.
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Postby scoobyjude » Fri Jul 10, 2009 8:00 pm

Siren, sorry to hear about your issues, it is probably best to start the steroids. I hate how expensive our meds are. I'm lucky that I only have to pay a $50 co-pay but if I lost my job and insurance-I'd be screwed.

Bubba, I feel for ya. I have to admit that I had the numbness in the butt cheeks and other places I'd rather not mention. I almost fell off my chair at work because I couldn't feel that only half my butt was on it. Talk about embarrassing.
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Postby GeoGuy » Fri Jul 17, 2009 4:43 pm

Sorry, I can't resist-

I had the numbness in the butt cheeks


Does that make you a numbass?

Seriously though, I have perminant numbness in my left hand and forearm and get the pins and needles sensation as a heat induce flare.

Jack

PS - it makes typing a challange and has apparently affected my ability to spell, although my grade school teachers wouldn't be surprised about the spelling thing.
RRMS since 01/07.
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Postby scoobyjude » Sat Jul 18, 2009 10:33 am

Sorry, I can't resist-

I had the numbness in the butt cheeks

Does that make you a numbass?



Ok--good one :lol:
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Postby BEZALEL » Sat Jul 18, 2009 8:00 pm

Hi Siren,

I hope the steroids will help you, I feel when I am in bed sometimes tingling and numbness on my left foot up to my angle, and I wake up, and rub my foot on the mattress and it goes away, it happens to hands as well, but not all at the same time. My neuro said, if it is longer than half a day, I should contact him.

About the Rebif payment. When my Cobra was abt. to finish, the Rebif nurse told me, that Rebif could cover me for a year, check it out on their website or call them, that you need help.

I did get another insurance, and have to pay to co-pay of $50. A Neuro at a lecture I went, had told us the medicine is so expensive, because of all the expensive research that had been done before. But I wonder wouldn't the money for the research come from donations.....????
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