This is my first post although I have been eager to post earlier. Just wanted to make sure that the positive changes are not temporary and are here to stay.
A bit about me: I am a 33 year old woman with 3 young children, 1,2 and 5 years old. I am not diagnosed with MS but have had a lot of MS like symptoms since august 2004. I am a Taurus and stand with both feet on the ground. This will be important later when I talk about how the GP's think my symptoms are psychosomatic. (Sorry about spelling and grammar, I am not a native english speaker.)
I had a stubborn lower backache since about February 2004 but thought it was due to the pregnancy. I had my third child in May 2004 but the backache didn't go away. Shortly after that in August two fingers on my right hand went numb for several hours. Then in October our whole family, including me, suffered from an upper respiratory infection with a very bad throatache. After that in November one day I started feeling dizzy and this dizziness has been there for hours every single day coming and going throughout the day accompanied by blurry vision and mental fog. A few weeks later my right hand and right foot started to tingle and felt heavy for hours. This would come and go throughout the day. My left ear became very sensitive to noise and popped once in a while. I also started to feel a lump in my throat which was a chocking sensation and tingling on my face.
I went to see my GP (new one since we just moved to the area). He checked my reflexes, and done bloodwork which all came back normal. I also told him that I had sufferred a bit from postnatal depression in the summer after my son was born.
So he came to the conclusion that all these symptoms were from my depression and wanted to prescribe me antidepressants.
I told him that I wasn't interested because I knew my body. I might have been feeling a bit low, but there was no way my symptoms were from postnatal depression from last summer. He was quite offended
I started checking the internet and insisted on an MRI which came back negative. (What a scary experience though) My GP had a grim on his face
How nice. Not only I have the responsibility to look after 3 children with all these symptoms but now instead of helping me and supporting me both the neuro and the GP was saying that I am a psycho. (Hence my nickname here.) The GP tried to convince me again about the antidepressants, but I saw no point as I wasn't even depressed!
I was so scared in December that I cut out all wheat and dairy from my diet immediately and started taking fishoil, curcumin and other supplements recommended for MS and lived on greens and fish. I lost so much weight although I only had a little extra even after 3 kids. My backacke got a lot better from all the inflamatory stuff I was eating.
Despite this drastic change in my diet my syptoms were there more and more often lasting longer and I even got a new one in January: muscle twitches.
Then I found this webpage and read about Sarah and the David Wheldon therapy which made a whole lot of sense even for me non-medical person. So I decided to give it a try. It definitely sounded better than taking antidepressants!
I went to see David who is a wonderful person and extremely helpful and started on his treatment just over 2 months ago. His attitude, understanding and devotion to help was amazing especially compared to the GP and neuro above! (My GP refused to give me an NHS prescribtion, so I had to fund my medication.)
During the first week on ABX my backacke of one year came back very badly for several days, then it gradually disappeared and NEVER came back since. (My husband likes to think it's his massages that helped, so let him believe that.
) I also felt extremely tired and felt pressure in my lungs which made me cough. During the second week all these stopped and I had 3 or 4 days without any symptoms. Even my dizzyness was gone which did not happen since November! Unfortunately a few days later I got a cold. Luckily it was quite mild but during it my syptoms did come back. During the first month the lump completely dissappeared from my throat.
In the following weeks it was like a roller coaster: for days I could feel very little of my symptoms if any, followed by a few days of worsening (but still lighter than before starting treatment.) This could be very confusing, until one figures out a pattern in it.
As weeks go by the periods without symptoms get longer and consequently periods with symptoms get shorter and also much lighter.
Now after two months the only symptoms I have left is an occasional little bit of heaviness in my right hand and foot that's barely noticable and is only there for minutes as opposed to hours and hours before the treatment. And the muscle twitches which are almost unnoticable too.
The dizzyness I had since november completely dissappeared about 3 weeks ago. Funny enough I just noticed this a week ago, that's how much I miss it
Seeing these improvements I soon gave up on my drastic diet (I love fresh bread) and the pounds of supplements I was taking and now only take the ones recommended by Sarah. I still eat quite healthy though.
Since starting the treatment I am also experiencing occasional aches in different bones and joints in my body. They are quite sharp at times but thankfully only last for minutes.
I just finished my first pulse of metronidazole. I didn't experience anything with it. That could be because my bacterial load is not very heavy or maybe more bugs will be killed with the second or third pulse. We will see.
I am extremely thankful to Sarah and David for helping me and helping others and be totally devoted and unselfish in doing that. All those textbook GP's and neuro's should give back their diplomas and do something that doesn't involve helping people.
I will keep you updated.
All the best to everyone!