At diagnosis in 6/09 I was not offered the vitamin D test. I did my own research and asked for the test shortly thereafter. it came back very low, 21 ng/ml which is the very low end of "insufficient" just above "deficient". Deficient is a level that causes rickets!
I chose to go on 10,0000 IU's of D3 for a little under 3 months, and was retested at 85, which is slightly above the high end of the normal range (considered by my lab to be 80), but way way below the low end of the "toxic" range (listed as 150 by my lab).
I decided to quit taking D for a little while, then go back on at 5,000 IU every other day. Next time I was tested (maybe 3 or 3 months later?) my level had fallen to 65.
Then I decided to try a daily dose of 5,000 IUs. I did that all winter, was retested in the spring after 6 months on that dose, and my level was 71 ng/ml, still within the normal range.
So I came to the conclusion that 5,000 IUs a day is the right dose for me. I live in a northern state and I don't get significant useful sun exposure most of the year.
One caveat is that if you live in a very sunny state and spend a lot of time outdoors mid day with large areas of skin exposed and without using sunscreen, you might consider cutting back your supplementation in the summer, or at least get your level tested mid summer, since whatever you supplement will be on top of whatever exposure you get naturally from the sun.
There are a few very promising small studies showing that vitamin D reduces MS relapses more than the CRAB drugs!
I'm wondering if the vitamin D thread should be reposted as its own forum thread in the "Treatments" section, so that more people will see it and be aware of its importance, rather than having it be nested within another thread as it is now, where it could be lost.
I recently read that big pharma is working to create a patentable version of vitamin D. This is discouraging, the vitamin is affordable and works, but we can't make money on it, so lets change and patent it. Yuck.
DX 6-09 RRMS