The following is a little conversation from CPN HELP, posted here because I think it is important not to use walking aids which effectively are anything but. Everyone who uses the antibiotics forum, especially, is trying to get away from the disease. You don't want to manage one thing but end up worse in another way.
Submitted by Michele on Wed, 2007-03-14 11:04.Submitted by Sarah on Thu, 2007-03-15 12:28.
Thanks Sarah for this enlightening expose on Nordic walking. I've already suggested these sticks to Ella, but at the moment she is not in a position to get much use out of them. So we will save it up for the future.
Michele: Wheldon CAP1st May 2006 for ailments including IBS, sinusitis, alopecia, asthma, peripheral neuropathy. Spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMS. Sussex UK
Hi Michele, I suppose what made me think of it originally was an awful holiday in the Auvergne, in 1999, when I just couldn't seem to make my legs move forward very much. I could manage climb up hills, although following way behind David, but then became petrified of coming back down. David made me a shepherd's stick out of green hazel, which was tall enough to hold myself upright, but the lack of handgrip was very annoying. Two poles with hand supports are much better. I just couldn't bring myself to use them in town for a long while, but once I did, I felt so much better and walked so much further. I have always walked or cycled and wasn't happy not doing so: now I can.
I suppose people think I am awfully cowardly for not attempting to walk any further since last summer. I however think I have been very wise: I could have forced myself to go further, I could have rested every few hundred yards then got up and carried on, but I realised that walking the way I was could easily lead to physical damage which I did not previously have. I was a cross country runner as a teenager but I haven't been able to run for years. Maybe now I will be able to again, but not if I am stupid. Maybe by using on occasion the Nordic walking poles, I will after a while be able to do this, on a quiet morning in the park with nobody around!...........Sarah
Submitted by wiggy on Fri, 2007-03-16 14:20.
Sarah, Thanks for posting this as I did not know what these treking poles were but think I may put them on my list. I am about 5' 7 and my walker is too short for me, well, I never have found one tall enough and I know this can not be good for my back. When my balance gets even better I will plan to try these out.
On Wheldon protocol for MSi since April, 2006. doxy 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyl Pulses start end Sept., LDN 2004
Submitted by Minai on Sat, 2007-03-17 08:19.Submitted by Sarah on Sat, 2007-03-17 09:58.
Thanks for writing this blog. I can't wait to try out my new poles
I found this page with a height calculator for adjusting them to the correct length. Worked for me : http://tinyurl.com/2sh7ek
RRMS, diagnosed 2/04. NACi 4/06. Started Wheldon regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Pseudo relapse/die-off with hospitalization 1/07. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY. Restarted CAP with NAC and Doxy 2/07. USA.
I have just tried out Minai's link and found that I was using just the right height without knowing it: it just felt right. Being reasonably tall for a female at about an inch over Wiggy, I have found many things too low to use comfortably, even something as mundane as an ironing board, but with devices meant to aid mobility I think this is even more important. If you are using a walker which you have to stoop down to use that can't be doing you much good. What does a six foot man do? End up with a bad back, I suppose. Wiggy, I think that once you feel confident a pair of trekking poles would do you no end of good, simply because you won't be stooping forward all the time.
Good signature, Minai!.......Sarah
Submitted by Michele on Sat, 2007-03-17 10:07.
Minai, I echo Sarah's appreciation of your signature. Its great to hear that there is no new disease activity. That is all you need to keep you going. Hope things go smoothly from now on.
Michele: Wheldon CAP1st May 2006 for ailments including IBSi, sinusitis, alopecia, asthma, peripheral neuropathy. Spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMS. Sussex UK
Submitted by katman on Sat, 2007-03-17 15:03.
Good blog, Sarah! And here we are already EXPECTING Wiggy to get well enough to NEED something besides a walker! Who ever would have thought someone already that far down the road would discard her walker? We would - it has happened before! Why not again?
Rica PPMS EDSS 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 39 pulses NC USA
Submitted by mrhodes40 on Sun, 2007-03-18 20:55.
Oh oh, me too! I use walking poles too and they help a lot. Old ski poles will do for a trial to see how you like it but the gait is really the trick. Thanks Sarah for the great link to the site that explains how to do it accurately. I had the benefit my sister's poles when we were on Hurricane RIdge and she already knew how to use them so I got her instructions. My experience was a surprising one of discovering that immediately I was walking much more upright than usual, with a nice cadence from the arms and legs all moving, this caused my upper body to be "lively" rather than locked as it usually is in my walking. It seemed easier to walk by a good bit. I can't say enough good about these kind of poles. Please get them or at least borrow some old ski poles or buy some at the Goodwill for a little trial. I bought my own pair of actual poles at Big 5 for 10 bucks per pole (apparently some people only want one!). THEY ARE GOOD STUFF marie
On CAP since Sept '05 for MS, RA, Asthma, sciatica. EDSS at start 5.5. Currently on: Doxy 200, Azith 3x week, Tinii 2x month, all supplements. "Color out side the lines!"