Some time ago, I was so grateful for the progress I had made that I said I would be happy at that level. Little did I know how much more was to come. It is now 10 days since Avonex and I am better than I used to be at the best day of the week a year ago with weekly doses- the prescribed rate of injection. This has become the best indicator of my progress- do I need it or not to maintain my almost best? Flagyl takes longer than I thought to clear- probably more by at least 2 days than the 5 I have been allowing. But it may be influenced by the Azithromycin I added on the advice of Dr. Stratton when I realized that my recovery was slowing. Maybe it wasn't slowing but my awareness has become sharpened. Anyway, it has been set back on track and maybe moved to the fast lane. My well-being is at a new level, enhanced by a particularly vivid dream of running. I woke up and saw that I was lying down and was only a little disappointed. I believe also that I am gaining some sensation where shingles were (was?) on my right rib cage. I said for 9 i/2 years that I could skin myself there and not feel it. That certainly is not true now. Since we now have obligations to our other site, I must cut this short and help broadcast to the world this small part of our message.
My regimen of abx is now:
Rifampin 300 mg 2xd
Doxycycline 100 mg 2xd
Azithromycin 250 mg 3x WEEK
Flagyl 375 mg 3xd- 5 days- beginning every 21 days
Many supplements which my body loves. I have to admit I have a real weakness with the diet. Can't seem to do without cheese and milk. I eat LOTS of vegetables, salads, fish, almost no desserts, no red meat to speak of and I am VERY rigid about the "empty stomach" before and after abx 2xd- sure makes you appreciate food! I have become fairly comfortable with this. If I have to do it another year I can.
Sorry, MacKintosh, for butchering your name after your help!
2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to flagyl. 90% normal good days-50% normal bad days. That is a good thing.