Rica said "You are taking your life in your hands!" DUH. "
Oh jolly good thing you did too!! No one else was going to do it now were they?
Forgive me if I rant? The copaxone people released a 25 or so year study on people with copaxone. about 28 people are apparently doing well with cop. But they lost half of the people, the other 28 dropped out of the study over the years apparently they thought it was not good or not working for them. IF we told someone that we had done an abx trial and half of the participants dropped out due to side effects or perceived lack of efficacy, do you think we'd be a laughing stock? You bet we would! We'd be scoffed right out of the halls of science. This cop study is not even credible, yet, Rica, should you have told your neuro you wanted this stuff he'd have complimented your intelligence for choosing one of the "proven" meds. What he really means is that he'd compliment you on choosing one of the MARKETED drugs that he keeps seeing in front of his face in the journal ads. Whether he knows it or not this is why he believes in it. Anyone intellectually honest is going to scoff at that kind of study being touted as "science". Yet we are "taking our lives in our hands" because we do this??? Good grief, sounds to me like it's the other way around. Ok let me be honest here: I take cop. Been on it for 8 years or so. If I go off my arthritis gets bad within 5 days. but it did not stop MS progression for me, though to be honest I am not sure I would not be worse without it. Who can know??
Rica said"and I have walked 45 minutes shopping (ugh) and still not been tired. " HAHA! I also hate to shop, but God help me I like to give everyone a thoughtful Christmas present. Used to be all year I'd keep a close eye out for that special something and just pick it up. This year I'm so preoccupied with not falling down I can hardly see the floor 5 feet in front of my feet. So, this year it's gift cards and cash and I am very sad about it. I feel I've lost something important about me. But it sounds like next year will be better. Good deal
The Stork Test!! Good one!
Stork test good leg=9 seconds
bad leg (right)=2 ( well OK maybe not quite 2 but more than one- one-thousand, two-one- oops! Rats. Ok here I go one- one thousand two-oops! Crud. Ok, this time....one-one thousand two...oops!)
And a new one from me the hop test, allowed to hang on with hand for balance (neuro's use this one)
left, good leg= can hop on this one foot 8 times, not high but I do leave the ground: a little hop
right leg= HA! are you kidding? That foot ain't leavin' the ground no how no way. It can't even go up on the toe, though I can raise the heel about 2 inches once or twice.
KK2 I get a 5 on the franken scale-enough to get people to say "did you hurt your knee? but not enough to get them to stand near "just in case" that'd be an 8 or 9 to me.
I love this new scale we are creating! We can all measure this way Great plan! Measurable posts! Fabulous! Newbies can do it for themselves before starting, eh? S-M-A-R-T yeah Rica!