CCSVI testing denied due to use of IVIG?

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CCSVI testing denied due to use of IVIG?

Postby zanne10000 » Sun Jan 02, 2011 5:55 am

Hi all-- asking this for a friend. She recently tried to get scheduled for CCSVI testing and treatment, but was told she couldn't because she's on IVIG? Anyone else have this problem?

I don't know if it's specific to IVIG, since I have a friend on Tysabri, who was able to get scheduled with no problems. I am also on Tysabri and working on getting scheduled, so I don't know if it's because of IVIG being an IV drug (although Tysabri is as well), or because it alters the veins somehow, or what? Thank you for any insight! :)
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Postby cheerleader » Sun Jan 02, 2011 3:56 pm

Hi Zanne,
Your friend might want to ask the doctors administering Ivig why the two are exclusive. But I'd be concerned about venous thrombosis, or clots, which are a known complication in Ivig therapy.

http://www.ncbi.nlm.nih.gov/pubmed/16965420

best to you and your friends--
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby zanne10000 » Sun Jan 02, 2011 4:23 pm

Thank you! That makes a lot of sense. I had never even heard of IVIG being used as a treatment for MS until around a year ago (and I even worked in an Immunology Clinic a long time ago, where a lot of people were getting IVIG every 3-4 weeks!).

Thanks for you response!

Suzanne
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