This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi all-- asking this for a friend. She recently tried to get scheduled for CCSVI testing and treatment, but was told she couldn't because she's on IVIG? Anyone else have this problem?

I don't know if it's specific to IVIG, since I have a friend on Tysabri, who was able to get scheduled with no problems. I am also on Tysabri and working on getting scheduled, so I don't know if it's because of IVIG being an IV drug (although Tysabri is as well), or because it alters the veins somehow, or what? Thank you for any insight!

Hi Zanne,
Your friend might want to ask the doctors administering Ivig why the two are exclusive. But I'd be concerned about venous thrombosis, or clots, which are a known complication in Ivig therapy.

http://www.ncbi.nlm.nih.gov/pubmed/16965420

best to you and your friends--
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Thank you! That makes a lot of sense. I had never even heard of IVIG being used as a treatment for MS until around a year ago (and I even worked in an Immunology Clinic a long time ago, where a lot of people were getting IVIG every 3-4 weeks!).

Thanks for you response!

Suzanne