My regimen(s)

Tell us what you are using to treat your MS-- and how you are doing.

Postby CureOrBust » Fri Dec 14, 2007 12:45 am

OK, the kit is on its way. I didn't send it off yesterday as I found it recommends not to send on a Thursday, so I waited another day. FedEx gave me a receipt stating it will be delivered to the destination by noon on the 17th (or was it the 18th...).

It says in the notes I will hear back from The Netherlands within 10-12 days. The info they send, should tell me what they have found to be the "stressors" in my system, and recommend some of their supplements that have been beneficial to similar people.

On the form I sent with my urine sample, they ask what symptoms you are experiencing, i sent:

Medical diagnosis of Multiple Sclerosis
Ataxia (walking, dancing, cannot run)
Clonus (Vibration) in my knees, Spasticity
Impaired Balance
Fatigue & Paesis
Urinary & Fecal Urgency
paresthesia in my feet
nystagmus when I look to the right hard

I listed them in the order of most "bothersome" to least, or most severe etc.
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Postby daisy » Fri Dec 14, 2007 10:03 am

Cureo - Thanks for reporting the process with the Vonner kit. I hope you will let us know the results and what they propose!
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Postby CureOrBust » Sun Dec 16, 2007 2:24 am

The evaluation kit left Paris at 2:30am local time, December 16th (I check its progress fairly often). I would therefore hope it will be at Vonner by 12 noon local time, on Monday the 17th. And then the silent wait commences for their results and advice on supplements.

I am really impatient to know the results and recommendations, and hopeful that it works. However, I do not have too much faith in that it will work; just hope.
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Postby CureOrBust » Mon Dec 17, 2007 3:34 am

The evaluation kit has now been delivered (11:09 am local time, in the netherlands)
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Postby CureOrBust » Thu Dec 27, 2007 1:40 am

I received the results back from Hegsii (the dutch researchers for vonner) today. their findings indicate i have a "strain of strep bacteria which resembles a fungus in its branching filamentous structure". Also that "All of your symptoms seem to be related to this strep bacteria"

They also provided a pre-printed sheet on this bacteria, including listing some of the possible symptoms. Out of the 16 listed, only one really relates to me for certain.

They have suggested I purchase their "Streptocept" and the "Clense System"; at $59 and $159 respectively. In adjoining pages sent to me, the second one is stated as being "optional", but to give this treatment 100%, I will purchase both, as well as their "Neurvox" as it just sounds helpful (".. supports nervous tissue regeneration...")
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Postby CureOrBust » Thu Dec 27, 2007 8:10 am

I have placed my order for the supplements.
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Postby CureOrBust » Fri Dec 28, 2007 2:37 am

The Vonner supplements arrived in Aus already! but I don't think UPS deliver on a saturday, so I wont see em till monday. Doh!
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Postby CureOrBust » Thu Jan 03, 2008 4:02 am

well, I got the Vonner supplements today. All but one of them are sub-lingual tablets. These tablets do not appear to be water soluble, so they just seem to break up into a powder under my toungue.

One of the supplements is actually a fairly common product used to cleanse your digestive tract. I am starting to worry, as its sounding like an internal sand blasting. Just do a search on google for "Homozon" to get an understanding of what I am talking of. So I have started the treatment.

The packaging has the ingredients listed, and they sound like a florists stocktake. For example, there is Garlic flowers, Pumkin flowers, gentain flowers.. etc etc etc

Today I also received a batch of my standard suppliments from iHerb, which also included a "trial" order of N-A-G. Lets see how this works as well. Problem now is timing each. The vonner stuff is going to have many timing issues as you cant take them 30min either side of food.
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Postby CureOrBust » Sat Jan 12, 2008 4:24 am

Just thought I would summarise all the recent changes to my regimen in one post.

1. Started the "Vonner" Cleanse, Neurvox & Streptocept supplements
2. Added 750mg x 4 twice a day of NAG
3. Stopped taking LDN about 2-4 months ago (it didn't seem to help me, but did increase my spasticity /clonus
4. Take Modafinil on the odd day to help with fatigue (2 doses of 100mg)
5. Reduced to almost none, of 4-AP (due to studies showing neg effects on repair)

It has been a while since my last relapse, and I have continued to improve very SLOWLY. However, the clonus in my knees is noticeably fading.
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Postby Frank » Wed Jan 16, 2008 5:58 am

I noticed the same spasticity worsening on LDN and also stopped it for that reason since about a month.

--Frank
Treatment: Gilenya since 01/2011, CCSVI both IJV ballooned 09/2010, Tysabri stopped after 24 Infusions and positive JCV antibody test, after LDN, ABX Wheldon Regime for 1 year.
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Postby howfreeisthis » Fri Jan 18, 2008 4:51 pm

your regimens are very helpful

please update more often!
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Postby CureOrBust » Sat Jan 19, 2008 4:07 am

I would guess it is helpful because so much of them fail. :(
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aimspro

Postby seeva » Wed Jan 23, 2008 8:58 am

CureOrBust wrote:
LifeontheIce wrote:So much improvement in three months


Yeah, when I was writting in all the dates, it put it all in perspective how quickly I was recovering. But the scary thing was how quickly I went down hill, with the relapse that happened while on rebif.


HI CURE
MY NAME IS SEEVA FOM SYDNEY AUSTRALIAAFTER READING YOUR FORUMS
MESSAGE. THAT YOU ARE ALSO FROMSYDNEY. AND YOU HAVE TRIED AIMSPRO IN 2005. PLASE LET ME KNOW IS AIMSPRO IS AVIALBLE IN AUSTRALIA.I TRY MY NEUROLOGY FEW TIME BUT HE SAID NOT IN AUSTRALIA FOR USE FOR M.S. PLEASE LET ME KNOW HOW I CAN GET AIMSPRO IN AUSTRALIA. ALL MY M.S FRIENDS ARE VERY KEEN TO GO ON TO THE DRUG.
REGARDS
SEEVA,
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Postby seeva » Wed Jan 23, 2008 10:38 pm

LifeontheIce wrote:Good morning, CureO!

What you are doing is essentially what helped me, except that I stopped statins in February. I am still on LDN, antibiotics and on the Direct_MS diet.

So much improvement in three months. Wish you more restoration soon.
B.


HI CUREO MY NAME IS SEEVAIAM FROM SYDNEY,AUSTRALIA LIKE YOU PLEASE LET ME KNOWHOW DO MANAGE TO GET AIMSPRO IN 2005 STILL NOT AVILABLE IN AUSTRALIA ACORDING MY NEUROLOGY.PLEASE LET ME KNOW
REGARDS
SEEVA :roll:
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