Just a quick update on a few things.
I didn't notice anything with the lions mane.
I have also tried a product from iHerb called "Myelin Support" or something. I didn't notice anything; well not MS'y, but I think it may have given me a slight tan. I don't have any other explanation, and other people have mentioned it. Weird
I am also on a self study of trying pulsed high dose oral steroids (75mg for two days). I have started with a two week cycle, but intend to expand it to 4 weeks.
I have been using Modafinil in a very sporadic manner. I consumed about 60 tablets over 7 months, taking 1 or two in a day, on days I expected fatigue to be a problem. I find it makes a noticeable difference in my feeling of fatigue. I tried it because cheerleader (http://www.thisisms.com/ftopicp-33464.html#33464
) mentioned it helped with her husbands motor skills, and also because it may be neuroprotective. I didn't get any real motor control improvement.
I got another script, and realised the most i have taken is only 100mg twice, in a single day. Reason being research found the lower dose was better for MS. However, doses well over 1000mg have been tested on humans. So, being the reckless guinea-pig that I am, I thought I might trial a higher dose. Last weekend I trialled 200mg twice in the day.
I noticed the general lifting of fatigue, slight more I would say, but nothing spectacular. What did surprise me was that the tingling in my feet seemed a little less prominent. And this continued the next day (with no modafinil).
So I thought, maybe it was simply the waxing and waning of MS, so I have waited a few days, and tried the higher dose again today. I again noticed through the later part of the day, that the tingling is less pronounced than usual.
Don't know what to make of it, it is what it is. Now I am going to monitor myself carefully for the pattern of it returning to the "norm", for me.