My regimen(s)

Tell us what you are using to treat your MS-- and how you are doing.

Postby CureOrBust » Fri May 19, 2006 2:19 am

I have added another data point to the graph.

Be sure to refresh the page to make sure you get the latest image. There should be three flagyl pulses, but the last is the current one which is actually tini.

I have plotted the planned end date of the tini pulse (ie the future) but I think i might stop it short (ie not the full five days)

Doing a graph like this does inspire me more to actually keep up the excercise, even when I am NOT in the mood. Which is a good thing.

And this is the graph so u dont have to go back a page.
Image
Gilenya, 80mg Lipitor, Inosine, Minocycline, Suppliments galore.
3 CCSVI treatments, no major noteable benefits thus far.
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Postby CureOrBust » Wed May 24, 2006 3:57 am

I have added another data point to the graph. Be sure to refresh the page to make sure you get the latest image. There should be three flagyl pulses, but the last one was actually tini.

I do feel a worse for wear, and the graph reflects this a little.
Gilenya, 80mg Lipitor, Inosine, Minocycline, Suppliments galore.
3 CCSVI treatments, no major noteable benefits thus far.
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Postby CureOrBust » Thu Jun 01, 2006 2:51 am

I have added another point on the graph. Refresh to ensure you get the latest.

Last week I had a fairly severe fever, and as this is a a trigger for a relapse. I had a minor one. I took two days of prednisone to turn the relapse around, and it appears to have worked.
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Postby SarahLonglands » Thu Jun 01, 2006 3:04 am

Gracious, CureO, that certainly looks impressive.8O

Its fun finding the graph, clicking refresh and wondering what you are going to see next! I tentatively made one of my own last weekend, but it looked so ridiculous done in a format to fit on the page that I haven't used it yet.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby Katman » Sat Jun 03, 2006 6:02 pm

Hi CureO

Your graph is very dramatic and clearly shows the ups and downs, demonstrating the long-term up we all want! Congratul;ations!

Rica
2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to  flagyl. 90% normal good days-50% normal bad days. That is a good thing.
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Postby CureOrBust » Mon Jun 05, 2006 4:33 am

I have added another data point to the graph. Be sure to refresh the page to make sure you get the latest image.

Your graph is very dramatic and clearly shows the ups and downs, demonstrating the long-term up we all want! Congratulations!


Thanks. Although I definitely have been improving, I think this graph is partially due to muscle rehabilitation, as well as nerve.
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Postby CureOrBust » Fri Jun 09, 2006 4:15 am

I have added another data point to the graph. Be sure to refresh the page to make sure you get the latest image.
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Postby SarahLonglands » Fri Jun 09, 2006 4:53 am

Show off! 8O :wink:
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby CureOrBust » Thu Jun 15, 2006 3:10 am

I have added another data point to the graph. Be sure to refresh the page to make sure you get the latest image.
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Postby CureOrBust » Wed Jun 28, 2006 4:23 am

I have added another data point to the graph. Be sure to refresh the page to make sure you get the latest image.

The graph has gone up, and i was suprised to say the least. I have just had two relapses in close proximity; and hence the lapse in updates. My walking is very unstable. But I guess thats why I decided to graph things. Too bad I cant really measure my walk easily.

You may also note a very thin red pulse near the end. On my previous pulse of the ABX's, i used Tini instead of flagyl, and i got a script for 6 days, while a pulse is five days. so i took the last two as a very short pulse just to finish them off.

I am currently holding off on my next flagyl pulse until i recover more from my relapse(s).

Also, since my last post here, I have taken a single pulse of an anti-candida medication called Diflucan, I took this as some have noticed improvements with reduced candida, and i am at high risk considering my use of abx's and prednisone (but tested negative a while ago).
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quick question

Postby jimmylegs » Wed Jun 28, 2006 4:46 am

hi cure you do also take acidophilus as part of the antibiotic program, am i right? i know sarah mentioned it but is it right in the protocol? or just a good idea when taking antibiotics...
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Postby SarahLonglands » Wed Jun 28, 2006 5:12 am

Well, I certainly hope he does because it is certainly in the regime, taken at a time removed from the bacteristatics! That, I presume, is part of the reason I have never had any yeast problem............. :wink:
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby CureOrBust » Wed Jun 28, 2006 5:13 am

yes, its part of the protocol, and my gp hassles me to keep taking them.
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Postby CureOrBust » Wed Jun 28, 2006 5:19 am

although, because i avoid them near taking the abx's, and they are refrigerated (ie at home) its harder to stay regular.

I use a brand with 25 BILLION bacteria (12.5b of lactobacillus acidophhilis and 12.5b bifidobacterium lactis).
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Postby SarahLonglands » Wed Jun 28, 2006 5:27 am

I take a brand with FOS (fructo oligosaccharides) because you don't need to keep it refrigerated, or eat some live yoghurt. You only need to leave two hours between abx and acidophilus, by the way.
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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