This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Wed Jun 19, 2013 6:46 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 177 posts ]  Go to page Previous  1 ... 3, 4, 5, 6, 7, 8, 9 ... 12  Next
Author Message
 Post subject:
PostPosted: Sun Aug 13, 2006 4:29 am 
Offline
Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2037
Location: Bedfordshire UK
Which mountain range are you climbing? I ask this because the Himalayas are still rising.

Incidentally, the toes on both my feet curl upwards when I do that, either along the side or the underside, the right foot much more than the left. However, my right foot used to jump out of my hand just by looking at it. At least now I can cut my toenails without stabbing myself in the face.

Sarah

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


Top
 Profile  
 
 Post subject:
PostPosted: Sun Aug 13, 2006 5:30 am 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2735
Location: Sydney, Australia
All I know is that I am starting to gasp for oxygen, no, literally, it's starting to become an aerobic workout now. It's at almost 8 minutes at the hardest setting (going in reverse).

I tried again this morning ... and just now ... and for the most part I could not get my plantar reflex to curl my toes up!! they did sometimes have a flick up after curling down. I think this will REALLY impress my GP if this continues to improve like this.

This improvement may imply healing in my cerebellum, damage which would be an explanation for my ataxia. However, this is still a major problem.

Had your doctors ever tried the plantar reflex previously? I am sure I read something about it when I was first diagnosed with MS.

And its only on my right foot that it went the wrong way. In the doctors sugery, i think the toes on my left foot hardly moved at all, either way.


Top
 Profile  
 
 Post subject:
PostPosted: Sun Aug 13, 2006 6:10 am 
Offline
Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2037
Location: Bedfordshire UK
Well, my toes had a mind of their own since, um, I can't really remember, but all of this century.It might have been something that happened gradually. I had my first MS trouble when I was 24, but it was all so mild back then, I just ignored it for the most part. I had my plantar reflex tested first by my neurologist in 2003. David has done it since, but I managed to keep it hidden from him before that, just cutting my toenails when safly locked away in a bathroom. My GP has never tested it, or an orthopaedic surgeon I saw in 2000, who wrongly diagnosed me with congenital spinal stenosis. Now my left leg either curls up but hardly at all, or curls down or hardly does anything. My right foot is more violent, but not nearly as much as before. I get David by and large to test it, because it is easier for someone else to do, but I know that I can cut my toenails on both feet without injury.

I think you will really impress your GP if this carries on, because as far as I know, the conventional theory is that once you have it you are stuck with it.

By the way, you got me worried when I started to read your first sentence about gasping for oxygen! 8O

Sarah

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


Top
 Profile  
 
 Post subject:
PostPosted: Sun Aug 20, 2006 5:12 am 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2735
Location: Sydney, Australia
and another point.

I started another flagyl pulse today. I was planning on delaying the next pulse until my walking had greatly improved, but, i am a little impatient.

My plantar reflex on my right foot appears to now be a definite curl down, but my left foots plantar reflex is all but absent. But at least, not up (i dont know which is worst).

Another thing which used to bother me: when i was sitting, and layed my right leg out horizontally, then quickly snapped my foot back so the toes pointed more back, in some positions, my foot would start to vibrate violently. Now, i find it hard to find that "sweet spot", and when i do, the foot only vibrates slightly. Its a minor improvement, and not totally gone, but i'll take it.


Top
 Profile  
 
 Post subject:
PostPosted: Sun Aug 20, 2006 5:14 am 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2735
Location: Sydney, Australia
and heres the graph, so u dont have to flip pages

Image


Top
 Profile  
 
 Post subject:
PostPosted: Sun Aug 20, 2006 5:57 am 
Offline
Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2037
Location: Bedfordshire UK
Up is worse, and the worst of all is violently up and toes splaying out. Sometimes my right foot still behaves like this, though not nearly as violently as before, so I can hold it down to cut my toenails.

I can't quite imagine what the positon is in the third paragraph!

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


Top
 Profile  
 
 Post subject:
PostPosted: Sun Aug 20, 2006 6:02 am 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2735
Location: Sydney, Australia
Anecdote wrote:
I can't quite imagine what the positon is in the third paragraph!

Imagine standing normally, then quickly raising your toes off the ground. Now imagine this foot/leg position/action, while you are sitting on the ground, with your leg in front of you.


Top
 Profile  
 
 Post subject:
PostPosted: Sun Aug 20, 2006 6:49 am 
Offline
Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2037
Location: Bedfordshire UK
Right, got it now. It was as I thought, but what I didn't get was why it makes your toes point back more.

I never tried it, but have done now and I don't get any clonus, which is what the vibrating is called. I don't know whether I would have done before, but I did get some clonus on standing up for several seconds, in my thighs and up to my waist, which has now gone completely.

Incidentally, your graph is looking very impressive. Its good that you do it so regularly, so that you can show all the ups and downs.

Sarah

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Aug 21, 2006 5:10 am 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2735
Location: Sydney, Australia
Anecdote wrote:
I never tried it, but have done now and I don't get any clonus, which is what the vibrating is called.

Now it has a name. I would of simply called it spasicity if anything, since it isnt directly from holding my foot in any position, its the quick movement that brings it on. I have hyper reflexes.

http://www.mult-sclerosis.org/clonus.html
Quote:
Clonus is repetitive, rhythmic contractions of a muscle when attempting to hold it in a stretched state.


There is a video at http://www.harkema.ucla.edu/clonusVid.html. although hers appears easier to start, mine used to be a lot more pronounced in the amount of shaking.

Anecdote wrote:
Its good that you do it so regularly, so that you can show all the ups and downs.

Personally, I think the excercise itself, helps with the recovery. Its also good to know there have been downs in the past, that I have recovered from. It makes it a little less concerning when i feel i have gone backwards.

Like now... I have just started another flagyl pulse (day 2 over), and I think my right leg limp has gotten noticably worse. This is looking to be another short pulse.

_________________
Gilenya, 80mg Lipitor, Inosine, Minocycline, Suppliments galore.
3 CCSVI treatments, no major noteable benefits thus far.


Top
 Profile  
 
 Post subject:
PostPosted: Thu Aug 24, 2006 4:57 am 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2735
Location: Sydney, Australia
and another point.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Aug 28, 2006 5:30 am 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2735
Location: Sydney, Australia
and another point. be sure to refresh the page to get latest.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Aug 28, 2006 7:25 am 
Offline
Family Elder
User avatar

Joined: Mon Feb 14, 2005 4:00 pm
Posts: 1364
Location: London
Wow!!!
8)


Top
 Profile  
 
 Post subject:
PostPosted: Mon Aug 28, 2006 4:04 pm 
Offline
Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2037
Location: Bedfordshire UK
Good grief!! :wink:

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Aug 29, 2006 1:53 am 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2735
Location: Sydney, Australia
gibbledygook wrote:
Wow! 8)

Anecdote wrote:
Good grief!! :wink:

I have to admit, i was pretty chuffed when I plotted it.
I find it a little anoying that although i have obviously improved for this measurement, and the tingling in my feet has been fading as well; I find that my walking is pretty laboured. I have gained a limp a few months ago, and its taking its time to resolve, but is improving.

_________________
Gilenya, 80mg Lipitor, Inosine, Minocycline, Suppliments galore.
3 CCSVI treatments, no major noteable benefits thus far.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Sep 04, 2006 6:02 am 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2735
Location: Sydney, Australia
and another point


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 177 posts ]  Go to page Previous  1 ... 3, 4, 5, 6, 7, 8, 9 ... 12  Next

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. ms regimen

basschick

0

1655

Sun Apr 10, 2005 9:00 pm

basschick View the latest post

There are no new unread posts for this topic. My regimen

Brownsfan

1

2149

Wed Nov 09, 2005 3:13 pm

natgas View the latest post

There are no new unread posts for this topic. My regimen

Pastryrocks

3

1642

Thu Feb 23, 2012 12:46 pm

jimmylegs View the latest post

There are no new unread posts for this topic. My regimen

cyllent

2

1542

Tue Nov 24, 2009 10:25 am

cyllent View the latest post

There are no new unread posts for this topic. My regimen

joeymia

13

1985

Tue Aug 10, 2010 4:41 am

jimmylegs View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of personal Multiple Sclerosis stories on Experience Project. Experience Project is an anonymous community where people connect through their life experiences, made by the same people who built This is MS. With over 30 million personal stories about every possible life experience, you can quickly find people like you!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers

Advertise on the premier multiple sclerosis forum