OddDuck wrote:Daunted:
I posted on July 1st under General Discussions, on the thread Chlamydia Pneumoniae about not getting too overly excited about all that.
OddDuck wrote:I was afraid word of mouth about this was creating more hype than what Dr. Sriram himself intended.
OddDuck wrote:I think, though, that Dr. Sriram's research into C. Pneumoniae is still going on, it's just that there are no conclusive results yet that he can even speculate on at this time, nor anything anywhere indicative enough that he would recommend taking antibiotics for MS treatment. That's not to say it might not be helpful, but so far, there is nothing "earth shattering" yet.
You posted a very good message quoting Dr. Sriram, in which he was appropriately conservative in saying that before c. PN can be considered a causative agent, a lot more research needs to be done. He (appropriately) put limits on what could be generalized from his experience. That doesn't mean we won't ultimately find that he is right, and that a subset of MS sufferers can benefit from antibiotics.
The negative findings you posted probably result from differences in PCR techniques more than anything else. This is well-debated in the literature.
There's an ongoing placebo-controlled trial and the potential for a NIH trial in the future. Sriram is being very cautious, as he should. I just didn't think he would be so cautious as to refuse treatment to someone who wasn't in a clinical trial.
I think the issue is liability, they are scared of getting sued for providing me a type of care that is unusual and/or unproven, if, God forbid, some antibiotics caused my head to explode or something. For right now, they would literally rather give me no treatment, than this. What this says about our medical profession, you can decide for yourself.
In any case, my initial post was about HOW to get the treatment, not how well the treatment would work.
I don't want to create a strain of antibiotic-resistant bacteria, for instance. I know they are trying all different kinds of regimens and some of those have publications behind them- the one you posted doesn't (although I'm glad to hear that a paper is in the works- would LOVE to see that when it is done being peer-reviewed.)
Of course.............If it was their kid that had early MS, I would guess they would try anything they could think of...and this has enough support in the literature that it is worth trying.
Anecdote wrote:(Just drink plenty of water and take the recommended supplements, especially the acidophilus and you should be fine with regards your liver and kidneys:I am.)
Best wishes,
Sarah
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