chrishasms wrote:I used to take 80-100mg of it a day until I had the HiCy treatment. Now I am at 30mg if I need it. I also take 4-AP when I need it...usually when I am doing a lot of physical work.
All you newbie's take a suggestion from a guy who wishes to hell someone was out there like me 5 years ago...go to one of the places doing HiCy or the CCVI treatment. Don't wait to get rid of MS until it is too late.
PS...I have been told by numerous doctors a Baclofen pump is the LAST thing they want to use because once it's in most people experience a level of disability from the pump itself even though it is helping with spasticity.
astro wrote:I've been on Baclofen 10mg 2x/day for five months now for spasticity that is most pronounced when I sit for a long time or when I get out of bed in the mornings. With some experience on this now, I believe spasticity is not improving and leg weakness is more frequent during the day.
My question: Some folks say baclofen has worked for them, and others have said that it did nothing. Does anyone have experience with it actually making symptoms worse? After 5 months, I don't know if I should stop taking it or increase the dosage...
Thanks for any thoughts.
astro wrote:My doctor first tried to get me on Clonazepam, I believe, but that just seemed like a pretty serious med with some rough side effects. I wanted to try something a bit milder first, and baclofen seemed to be it.
I question if baclofen may cause worsening because my use of it seems to correspond with an increase in leg weakness. That could be a coincidence, but I wanted to see if others had that experience.
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