Cheerleader's Regimen for her Husband

Tell us what you are using to treat your MS-- and how you are doing.

Postby DIM » Wed Mar 19, 2008 3:43 pm

Hi cheerleader,
your case perfectly mates with my wife's case as she was jaundiced with high liver enzymes at first, she has had many MRI lessions (14-15 brain and spinal cord), she has first diagnosed last Mars and we also follow a BBD with many supplements (do an ELISA food intolerance test, you'll be surprised from what foods are good or bad for your husband).

BUT, my wife has had 4 mild relapses this time probably cause we have delayed her regime until last December when she started LDN and supps and LDN caused some introductory symptoms that seem with relapse but aren't.
Our regime, if that matters, is as follows:

2gr Acetyl L-carnitine (4 times x 500mg)
400mg ALA & 50mg Q10
150 mg Pycnogenol with grape seed extract
1gr EPA & 1gr DHA (omega-3)
44mg Zinc (very important for healthy adrenal glands and viral load)
200mcg Selenium (potent antioxidant)
300mcg Chromium (helps in isnuline resistance, high liver enzymes are connected with insulinoresistance)
700mg Calcium
400mg Magnesium (for spasms, although 2gr GABA before sleep works better on this)
60mg vitamin E-tocotrienol (high promises for MS according to last researches)
200IU vitamin E (tocopherol)
300mg vitamin C
100mg each of B-complex (now every other day as she has high levels B)
400IU vitamin D
250mg Choline - 40mg Inositol
1gr curcumin

For the leaky gut:
2caps Achidophilus
1,5gr monolaurin ("Lauricidin" which also inactivates most lipid coated viruses as EBV, Herpes, Pneumoniae, HIV etc and boosts thyroid function, give it a try, worth the effort)

I am going to add 2mg inosine until she reaches optimum levels of uric acid (now is on the low side) and as you say I'd spend all our savings to help her!

Good luck with your husband, we are on the same boat...
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Postby DIM » Wed Mar 19, 2008 3:52 pm

Just to ask have you had a hair test for heavy metals?
I am going to do this to my wife as last November she had one relapse immediately after a visit to dentist where she removed amalgam fillings,
you know, mercury poisoning etc...
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Postby cheerleader » Tue Apr 01, 2008 9:51 am

Hi DIM-
Looks like we're on the same page with our spouses' treatments. Thanks for sharing your info. We tried the Lauriciden, but it gave my husband an upset stomach. All other supplements look very similar. We haven't done the heavy metal testing yet, but my hubby has 12 amalgam fillings, and one doc felt we should look into having them removed by a biological dentist following the Huggins protocol. Still haven't completed that.

I'm sorry your wife has had the mini-relapses. I know how stressful it is, trying to keep ahead of all the MS symptoms. My husband is also on Copaxone, and I feel I have to give some credit to this medication, since he has had a stable year....but who really knows? Perhaps his MS would have quieted down naturally after his first flare.

It feels good to be proactive, to have made the diet changes, supplement changes and lifestyle changes. I hope the LDN keeps your wife stable and healthy. My husband has a terrific attitude and spirit, and his positive energy and sense of humor have made this transition in our marriage less scary.
best to both you and your wife-
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby cheerleader » Mon Apr 14, 2008 8:43 pm

Couple of updates:

Have added 500mg. of quercetin in the late morning. Really helps energy levels. Jeff's now only taking half his daily dose of Provigil. Feels much less fatigue!

Recent saliva test shows DHEA levels are WAY too high, so we'll be backing of on daily supplementation of 50mg. to every other day.

Thankfully, all quiet on the western front,
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby cheerleader » Tue Apr 22, 2008 2:48 pm

Update-
Just added daily 100mg. minocycline to the mix. Dermatologist prescribed it for skin irritation, we'll see if Jeff tolerates it, or has any added benefit.

AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby DIM » Wed Apr 30, 2008 3:11 am

1-2 spoons biological olive oil eliminates skin irritation if drinked daily!
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Postby cheerleader » Wed Apr 30, 2008 8:02 pm

I'll take a shipment of extra virgin from Greece, DIM :)
You have the best olive oil and feta cheese...yum.

Jeff's skin is actually fine, but we wanted to try minocycline, and the only way to get the prescription for this antibiotic was thru our dermatologist. The only way she could prescribe it was to find a tiny little pimple on his face. The pimple is now gone.

Jeff's energy has been much better this week. He's getting alot of work done, going to sleep later than usual. Not sure if it's the antibiotic, but he's feeling really great.

I hope your wife is stable and you are finding even more ways to help her.
You're a terrific source for nutritional information.
Thanks,
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby DIM » Thu May 01, 2008 1:27 am

AC I didn't want to sell you biological olive oil although my parents have a farm with more than 2000 olive trees but what I told you regarding skin irritation is completely true, if you have dandruff just before wash your hair apply some pure olive oil and dandruff will dissapear afte two-three baths believe it or not! :lol:

My wife is more than stable and probably much better than before diagnosed with MS, of course exercise with vybro machine, supplements/vitamins and the LDN play a huge role on this!

I'll convince you one day to try LDN in your husband, it has no side effects (except some introductory symptoms not in all patiens) it boosts immune system contrary to what other medicines do and increases remarkably endorphin levels that regulate immune response.
Plus it gives you unbelievable energy all day and costs less than one supplement itself per month!
Worth a try.
Good luck with your husband, I keep away from my wife viruses/bacterials with Lauricidin and inosine (it also works against some infections and boost immune system).
Jim (or Dimitris in Greece)
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Postby cheerleader » Thu May 01, 2008 9:11 am

Dearest Dimitris,

My husband's new doctor wants him to start LDN, so you're timing is perfect! I have read much of the research, and it makes sense to me. As an opiate inhibitor, it forces the pituitary gland to "wake up." MSers have depleted pituitaries, and autopsies show smaller pituitary glands.

We may begin as soon as next week. He may/may not try taking a break from the Copaxone. We'll see!

I would love to see a picture of your family's olive grove. Maybe post on the picture thread when you have a chance. I've never been to Greece, and hope to travel with the family one day.

I'm SO glad to hear of your wife's progress.

Blessings to you both,
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby DIM » Thu May 01, 2008 12:48 pm

cheerleader wrote:Dearest Dimitris,

My husband's new doctor wants him to start LDN, so you're timing is perfect! I have read much of the research, and it makes sense to me. As an opiate inhibitor, it forces the pituitary gland to "wake up." MSers have depleted pituitaries, and autopsies show smaller pituitary glands.

We may begin as soon as next week. He may/may not try taking a break from the Copaxone. We'll see!

I would love to see a picture of your family's olive grove. Maybe post on the picture thread when you have a chance. I've never been to Greece, and hope to travel with the family one day.

I'm SO glad to hear of your wife's progress.

Blessings to you both,
AC

Well it seems we communicate some way although our families have never meat!
Start the LDN ASAP and hope you'll see the positive results soonly, it doesn't interfere with copaxone but if you don't want to continue the devastating injections as my wife stop it after LDN show remarkable results.

My wife has had introductory problems, old symptoms reappeared periodically but lasted no more than one two weeks and where mild, this for the first 1-1.5 month.
I thought they were new relapses but as she recovered easily according to some other LDN users and Dr Bob Lawrence she decided to continue it and avoid steroids (it took only once oral prednizolone before LDN).
Dr Maria Gironi - Italy in her recearch (published in the last AAN) found that LDN needs 2-3 months to stabilize bodys endorphins to normal or above normal levels and even if you stop it after a period of 6 months it conitnues it's work for some time!
Be carefull to buy it from reliable pharmacy and use a filler that your husband can tolerate, we take it from Skip's with avicel (cellulose) filler as calcium carbonate delay it's absorption and lactose cause intolerance, I'd like to try acidophilus as filler but as we are far away from USA we have no choices either!
Just for your info from 5 friends with MS I know here in Greece it stoped completely illnes progression - they all follow some type of BBD or modified Swank diet and take supplements.

Unfortunately I have no pictures from family's olive grove here in Thessaloniki where I live only some pictures from the village I grow up in central Greece, I'll post them!

All the best to you and Jeff...

PS:Sorry for my poor English I have never been teached (only French in University) so what I write is empirical and from what I have learned through my job.
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Postby DIM » Thu May 01, 2008 1:17 pm

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Postby cheerleader » Fri May 02, 2008 7:47 pm

Thanks for the BEAUTIFUL pictures, Dimitris. I am posting them on the picture thread, since they are so lovely, and I want all our members to see them.

What a blessing to have the internet and to be able to share our lives and stories with each other. It takes away so much of the fear of this disease- and makes me appreciate all we have.

blessings,
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby cheerleader » Fri May 02, 2008 8:05 pm

PS-
Your English is perfect!
I am embarassed pas que je parles un petit peu de Francais, ich spreche ein bissen Deutsch, e parlo un po Italiano.

I had only one year of study for each in music conservatory as an opera singer, and I can pronounce (and sing!) the languages, but I cannot speak or write any of them fluently.

You have nothing to apologize for!

AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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anti-oxidants...

Postby RedPenguins » Mon May 05, 2008 12:00 am

Hey AC,

I've heard that boosting anti-oxidants (other than thru natural food) may not be a good idea in people with MS - as we're not fully sure what the effect it will have on the immune system. It seems as if on one hand it could be very good, but on the other, not so good. Just wondering your thoughts on this. Oh, I was also told not to do extra garlic. This is what I've learned from people at UCLA in a program I'm in for people recently dx with MS.

~Keri

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Postby DIM » Mon May 05, 2008 12:03 pm

Keri it depends from your approach to MS, if you believe it's an illness that causes nerve degeneration due to overactive immune system then the antioxidants may be aren't the best thing for you but if you - as I do - believe an unstable immune system causes all this destroy they are more than necessity.
If you search MS clinical trials at http://www.ncbi.nlm.nih.gov/pubmed/ for the known antioxidants they all conlude that those elements delay remarkably MS progression or help remyelynation say curcumin, fatty acids, inosine, N-acetyl cysteine, pycnogenol etc
LDN also boosts immune system through body endorphins and if you read testimonials it has great success against MS, ALS, IBS and so on!
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