My first attack started with vision problems. I described it then as "a snowstorm in my field of vision. Then right arm felt weird.unco-ordinated,
parentheses. right leg dragged, bell's palsey, extreme stress, panic attacks,dizzyness,optic neuritis in left eye. The year 1984..I was 28 yr old with 2 small children. Diagnosis possible ms.
1997 another flair..right leg limp/drag, dizzy/vertigo, sleep apnea, vision blurry, muscle/joint pain Diagnosis SPms
gradually gait has worsened to the point needing a wheelchair/skooter to go more than a few steps.I had to hang on to walls and furniture to move around indoors, can't have throw rugs on my floors as they trip me. Have fallen many times.
Aug 2004 started minocycline 200 mg/day,try to drink lots of water, also periodically do lemon,water,olive oil drink. milk thistle,Alpha Lipoic acid' omega 3 capsules. Acidophilous!!
Oct.27 Will add Rafampicin 600 mg/day
Have noticed improvements in balance,spasms are definitely decreased...I can stretch my legs in bed without spasming! Hand grip is stonger,pain in finger joints gone. L'hermite's sign has lessened, On good days I can walk unassisted 50ft and raise right leg 1.5 ft off the ground from a lying position.
Hard to evaluate right now because I have been in a continuous herxheimer since beginning abx.
Oh yeah, I can stand at my kitchen counter long enough to wash,dry and put away dishes. My knees used to buckle and collapse in seconds when I tried this. Knee bends are still difficult, but on a good day...