Since my last update, about a month ago, I have experienced both good and bad periods, but mostly good. I have now been on David Wheldon’s treatment for about three months and there seems to be a pattern emerging. I feel best about three or four days after a metronidazole pulse and then my condition slowly deteriorates until the next metro hit, when I have another great leap forward. After the last pulse, I was jumping up and down - literally.
Most symptoms appear to be slowly dissipating, as previously described. My worst days now are still better than my best days used to be and my best days . . . wow! However, weakness on the right side of my body, particularly in my leg is still a problem and there has been little or no resolution in that area.
My GP just announced he is quitting private practice, so I hope I will easily find someone willing to prescribe the required antibiotics. I saw the young doctor who is taking over my account and after saying he didn’t know much about MS, agreed to read David’s paper and will let me know what he thinks on my next visit. Somewhat encouraging that he agreed to look at it.
The other day, I had an appointment with my neurologist. Unfortunately, I have been experiencing some spasticity problems and was not walking as smoothly as I had been only a week before. After a physical examination, in which she noted my spasticity problems, she concluded objectively that I had held my own since my last visit six months ago. Most of my symptoms which have shown improvement cannot be measured objectively and can only be put down to “Colin says”. A scientist can’t make a judgement based on that. The experience has dampened my enthusiasm, but only a little.
The neurologist would not prescribe antibiotics for me. She's not a doctor of alternative therapies. Leave that to the GP’s. She agreed, however, to see me again in six months. I must commend her for being so professional with me despite the fact that we live in a small town and I must be making her work a little more difficult. There have been other inquiries about antibiotic treatment. Before my next appointment, I will have my eyes re-examined. I had full field tests just before I started taking minocycline last May. We'll see if perceived improvements in vision are real, then.
The up and down nature of this recovery is a little unnerving, so I look forward to the start of a metronidazole pulse next week. I have tolerated the metronidazole pretty well and will try to extend the pulse by a day or two this time. I am experiencing a few minor side effects, but they are easily offset by improvements in my condition. I have some pain in my legs, particularly when waking in the morning. I have been taking more naps and have a very itchy spot on my lower back, approximately over my kidneys.
Perhaps it has been mentioned on this site previously, but I ran across a website belonging to Bob Miller, who seems to have a wealth of information about the Vanderbilt studies. Can't hurt to post it again even if everyone else has seen it already. http://home.earthlink.net/~robert016/ms.htm