So, when you are now walking without the cane you are having to retrain all those brain responses. You have used the cane for many years --
Yeah 5 full time years now. I want to be clear I still use the cane when I walk anywhere other than PT where they are ready to grab me. I am TRYING to walk in the house without using the wall or anything to practice. I only succeed some times. I went to the mall today and was frustrated I felt too scared to go without my rollator to be really sure (I can't fall and break my arm again) 10,000 repetitions. I believe it. this is very hard.
now anyone want to wager how much is mental and how much physical
I'm about the same as you especially with the morning stiffness and the standing up stiffness and the spasms. My eye deficit is also very rare. In fact I'm going for days and days without noticing it at all. At any rate I really hope that the bioness machine can assist in retraining your walking. I wonder if they have a bioness skiing machine!!
Alex did your pre stent spasms resemble mine: they used to fire off about one every 10-20 seconds when I went to bed and they'd do that dwindling down over 30-60 minutes or so as I fell asleep and my bedtime drugs kicked in. I felt WRACKED by spasms I tell you!! I'd take the drug and that would calm them but they'd not go away altogether; they could start back up any time. I'd often wake to go to the bathroom and they'd get going again, sometimes I'd have to take a second dose to go back to sleep and I'd lay there trying to will those things away somehow and hoping not to wake hubsy. Ugh.
During the day I would get them too. Occasionally just standing I'd get them the knee would just yank itself up for no apparent reason and whack whatever was in the way; an open drawer, countertop whatever. Once I had one that attacked when I was standing next to the couch and as it fired off my foot got stuck under the bottom of the couch but the spasm went on, twisting my knee till it popped. It hurt for weeks after that. It was like dealing with a physical rebellion, I didn't trust my body at all.
Having these be gone cannot be understood by persons who don't have them. I don't know if everyone will get this change, I know Holly in the 2 months we had to talk about it did not notice a change, but then again, this did not really kick fully in until the last few weeks for me though it has been improving this whole time.
Sharon has the right of it the changes are subtle almost unnoticeable until they accumulate.
But anyway I just hope that if your spasms were like mine were and the change you have is really similar maybe this is something others may look for, but I am not sure any others with stents had these like we did... I'm pretty sure Lew and Sharon didn't have them.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
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