Well let's hope there is some more healing as time goes on. I do imagine that things working better will mean that the body can do some healing, we do have stem cells in our brains naturally and they should be able to funciton better I think with proper bloodflow.
Update: It is now 2 weeks and a day after stent placement.
Abdominal site: the area where they went in to the femoral vein had an unusual complication in that I had a bleed into the abdominal muscle. This had been further complicated by the fact that I have flexor spasms which at night pull on the trying-to-heal area and are keeping it in a semi hurt state. I am taking 3 times as much Baclofen as normal to keep the area quiet, and healing is slow. This is an unfortunate problem, not expected for everyone.
The stent site: I still have discomfort in the neck, I spend a good portion of my day heating up wet kitchen towels in the microwave to throw around my lower neck like Rocky Balboa
It turns out Jeff happened upon the same cure for sore neck. For some reason the stents in the high jugular position cause this hopefully temporary neck pain; Dr Dake does not know why and though I offered the idea the accessory nerve is irritated, he is not signing up for any particular theory at this point. My trapezius muscle-the one Spock grabs- is the hurting thing and it seems weaker compared to normal as well.
It is getting better all the time I now seem to have a good day and a bad day alternating. I find a bra strap is irritating to the neck so I am finding camisoles a good choice instead.
The computer is the worst offender for the irritation of the neck. Typing makes me hurt consistently so computer time is limited. IT is better if my head is held really high and straight and my back very lined up tall...books on the head type thing
As for function: I am limited in terms of how much I can do I have had a devil of a time with the abdomen... it flares back up if I overdo it. I actually had a CT scan of it this week and they saw the fluid of the resolving pooled blood in the abdominal muscle. I have to rest it or it gets very sore so I am not on my ellipse as I planned to be, nor am I trying to walk a lot as that makes my stomach hurt too. The one time on the ellipse was really promising with no heat sensitivity, but I have not been allowed to exercise like that....though I did feel better stomach wise 2 days ago and so I decided to I walk around. I walked well that day it seemed--really well until my stomach got sore again--oh man that made me mad that it flared right up....I AM SO FRUSTRATED BY THE NEED TO REST I CAN HARDLY DESCRIBE IT!
Doesn't my body understand that I want to run? That everyone wants to see how this is working? that I depserately want to test out the new circulation? geez......
My mental landscape before treatment was to believe after this I would feel great and be able to walk and exercise and start healing, that I am not able to do that seems cruel... the ongoing pain is frustrating the need to rest irritating in the extreme.
I am still feeling good about my decision to participate in the effort to trial this therapy. I had no other options so I am pleased to be able to move forward with something.
as frustrating and difficult as my mental landscape is right now, it is nothing compared to being SOL as far as treatments of any kind go and just waiting to go down the drain.
I took my chance at the brass ring, we'll see if I actually got it....
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
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