I have experienced intense late evening tingling in the lower spinal cord area, not dissimilar to the sensation immediately after using the infrared sauna in that area. So far I have had no further deteriorations and the new numbness and stiffness is limited to the lower body area. My right hand stiffness, swallowing problems and movement-induced phosphenes have been entirely absent in this latest downswing. The bladder seems no worse either. The night spasms affecting my legs were curiously absent last night and very weak in the previous few nights. It's as though there's so much inflammation that not even the twitchiness can make it through. Both legs continue to suffer a new numbness and stiffness especially in the knee areas and the right foot is now very spongy and sausage like. Curiously this has impacted my walking less than I had feared and there is even a certain inexplicable jauntiness to the right foot tread. Curiouser and curiouser. I am still necking doxicycline and roxithromycin.
I meant to add that since last sunday when this new deterioration started I have been struggling with what seemed a minor cold but has now transformed into a full-on gastric flu and I can't seem to eat anything especially antibiotics! My partner thinks that the whole deterioration is down to this cold as he was vomiting last weekend and spent two work days in bed. At least the numbness in both knees seems to be better in the mornings. I had to stop all antibiotics last night as I'm feeling too unwell.
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,