Apologies for not answering but Sarah was right, I have been away since early December and without much time to make any updates to the site. To answer your question regarding why I continue taking abx I still can't help thinking there is something behind the theory and trial data keeps pointing to the benefits of minocycline. The fact that I have experienced a bad relapse after prolonged metronidazole use and 21 hours of infrared sauna doesn't absolutely rule out the theory although it does make me much more skeptical. It has been suggested that people do a minimum of 3 years and even up to 5 years on the abx and I always swore that I would try to do 3 years. This is fast approaching.
I added fibrinolytic enzymes to the combined antibiotic protocol in october 07. Initially I was quite cautious with the dosing and I seemed to have quite substantial reactions with bad spasms in the first few days. Then these improved quite substantially and I gradually increased the dosage of lumbrokinase and serrapeptase and nattokinase until I was exceeding the recommended dose. Around this time the deficits which had first appeared during my relapse in the summer reemerged and my walking became very poor once again although it wasn't quite as bad as the summer; I could manage more like 20meters as opposed to about 5meters in july 07. I therefore reduced the level of enzymes to the recommended amount and gradually my walking improved although it is still quite some way away from before the summer relapse. I guess I could manage about 400 meters although I haven't even tried. I have rather lost the hope and energy to try. Since starting the enzymes I have had low-level but absolutely continuous sneezing and nasal mucous production not dissimilar to but much more extreme than when I started taking N acetyl cysteine. I have also noticed an increase in bruising which was particularly noticeable when I was on the high doses of enzymes. These have now calmed down except for one rather remarkable bruise which looks like a section of vein.
I am now on my 41st pulse of metronidazole. I have noticed that pulses in combination with the enzymes go hand in hand with much worse deficits than when on flagyl alone. #Although this could be random. To conclude; after 2.75 years on the cap I now have much worse walking and new painful sensory deficits in the left leg, all other deficits such as phosphenes, right hand numbness/coldness, bladder and bowel problems remain the same.
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,