Thank you very much Alex and Rica! I'm the one beating the horse, I am sorry about it but thank you so very much for your quantification of your progress. Being able to walk 900 meters in heat and still move normally is a BIG deal, when before you could walk "around 800 meters in an OKish style" I hope my asking for this does not seem faulty but instead protective..There has been a meltdown of sorts among the general discussion thread about abx. It helps others to see something that can be quantified.
I personally have read enough information about it to think it is a good approach scientifically and sound judgement to go ahead and do it empirically. The newest addition to the abx theory is here.
http://www.bostoncure.org:8080/article. ... 29/1140239
Yet another scientist saying bacteria are overlooked as a source of chronic illness. People who do not give credence to this possibility have not studied it thoroughly, IMHO. This is not one or two people, it's a bunch of them all over in various fields. Sarcoidosis, Rheumatoid, Alzheimers to name a few. It is fair though to wonder if a new treatment will cause an exacerbation, so what is written here will tell others about people's experiences with that.
Obviously Ram Sriram, Charles Stratton, David Sheldon, and various other researchers producing evidence of CPn in brains are believers in this approach. There are some in general practice that also findit compelling like my doctor.
But those doing
this are pioneers. The first to go ahead into that territory and see how they do. People are anxious for things like numbers that mean something 900 meters means something
. The edss scale uses distance to ambulate unaided as the main means of grading your MS. This is a very valid way of quantifying how you do. Interesting that you lost ground during the flagyl pulse to a pseudo flare and have recovered to beyond the normal level. SO during the flagyl flare, you could go 5 meters, much less than normal for you,but then afterwards you could go 900 meters and in a normal gait, much better than before.
Gosh, how many exacerbations of MS have you ever had in your life that after they were over you could go further
? I've never had one like that, nor have I heard of it. A steroid can't even do that.
Alex, you just gave us the best anecdotal evidence of pseudo flares there could be.
p.s I am not offering medical advice. Everyone should talk it over with their doctor as this is a unproven therapy. I'm just making a point. I think I'll make this my signature...