This Is MS Multiple Sclerosis Community: Knowledge & Support

I have not been able to figure out how to post except for this, please excuse me if this is not ok.
Diagnosed 2-97
The main medication I have been on the last 5 years is IVIG. It has been a life saver . Is anyone else familiar with it?
I am extreemly interested in CCSVI as it seems to me a genuine missing piece.
PS Hope I can find any comments and learn to navigate here, not sure where this will end up ... Please help!
The people on this site are astonishing!

took it for yrs, LOVED it - felt like super woman
came off when I learned how risky it was - doing FINE w/o it
L

Thinking of starting IVIg.....found this post.
Is it that risky?

Gave up on this post as there was no reply and now for some reason got an email.

I don't know what risks Imacalus is referring to . It is a pooled blood product . They say the risks of viral infection are extremely rare given the processing. I would chose that over any "MS" meds any day. I was on it for a total of 5 years as well , with interruption by my health insurance. It helped me dramatically till i was switched brands. Actually was able to exercise and rebuild muscle.

Had procedure for CCSVI July 2010 and stopped IVIG. Had great results !

Cool, maybe its worth a shot then????

Slightly worried about the CJD risk though...apparantly the screening isn't so great with CJD as its a protein or something.
Also worried about my reaction to it.

Did you have any relapses when on it? Did any of your symptoms improve?

I have heard they have changed the solutions. My dr was telling me they lowered the sodium and have added other stuff to it. I hope its still as good.