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 Post subject: How Do I Get It????????
PostPosted: Tue Feb 23, 2010 3:43 pm 
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Joined: Sun Jan 10, 2010 4:00 pm
Posts: 41
Location: Raleigh, NC
plain and simple - HOW DO I GET HICY?

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PostPosted: Tue Feb 23, 2010 3:51 pm 
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It looks like the closest place to you would be Hopkins in Baltimore (I think the only other place is Rush in Chicago). Give their MS center a call, and they can give you details. Chris has posted contact info before, but if want to send me a PM, I can give it to you. Even though it's been posted here before, I don't like posting specific names and numbers.


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PostPosted: Tue Feb 23, 2010 4:54 pm 
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Thnx for the reply. be on the lookout for a PM

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PostPosted: Tue Mar 02, 2010 6:30 pm 
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First you have to want it! Sounds like you do! Research it like crazy, so you know what is going to happen.
Make a choice of how you want it. John Hopkins you are in the hospital for 4 days to get the chemo, then IPOP. (in patient /out patient care) you stay at a hotel nearby. At RUSH University Medical Center you are hospitalized the entire time.
My neuro says they are doing the treatment in Rhode Island, I don't know about that. I do have a friend that had the protocol of JH followed by her doctors in Dallas. You can friend me on facebook, or check to see if my email is on my profile, I don't remember...LOL

Stephanie Radomski


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