Chris here, was wondering if anyone could help. I am scheduled to start cyclophosphomide therapy in 9 days. Its a major infusion, four hours, every 28 days. How do I know Im doing right with this...my neoro told me the hicy is not something they do there and could not refer to anyone accept John Hopkins. I am dds 6.5, I beileve he said this is not what they look for typically? I have read conflicting reports however. Cant type anymore. Would love a phone number or referel to someonw currently treating in HICY
Chris A Atlanta, GA, can travel - so anywhere I can consult and schedule would be greatly appreciated!
Strange my neuro would have never mentioned this treatment option had I not mentioned it first. when I showed up for my appointment i gave to the nurse who takes your vital the word cyclophosphomide, I then asked her to show it to my neuro so he doest get blind sides when I ask him about it.....next thing I know I sceduled for chemo therapy....but am I supposed to go through this to get to the HICY?