Shawn wrote:My husband and I have actually heard the person in the video speak at an MS function and my husband, Mark, met him and spoke with him. He says that he was deteriorating quickly and decided to go into the study. He indicated that he was in bad shape and has gotten so much better that he is actually now employed as an MRI tech!
LR1234 wrote:Me too. I am sorry to hear what has happened.
I have a lot of issues with my eyes as well (retina thinning seen on OCT) but no sign of optic neuritis when they look into my eyes they look normal. How did retinitis present itself? and were they able to see it by looking at the back of your eyes?
I have had MS since I was 17 but I was only diagnosed 2 years ago (aged 31). My eyes and sensory issues are my major probs. I still do relapse and will def look into Revimmune once I have had children. If not that I will look into campath and stemcells.
Is there nothing the dr's can give you now to help? Other than drugs have you tried fish oils, aspirin, Vit D, Zinc, LDN supps?? or any special diets (gluten/dairy/low fat)???
Thanks for sharing your story
Frank wrote:While this video looks impressive at first glance, I think reality does not look like that. I mean people here on this board who got this HiCy treatment did not have these alegedly great experience. And while it is not clear what the date of that video is I think 30 patients with 20 being followed for at least 12 month seems humbling. And 12 month follow up is not that much telling in terms of MS progression.
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