My optic nerves have also been normal. When I was 21, my vision became milky white, primarily in my left eye. I could still see but it was like a heavy fog. Pred Forte eye drops cleared it up each time and it really never seemed like a big deal as my vision remained mostly correctable to 20/20. Yes, they eye docs were able to see it very easily.
My regular neurologist has told me that she, if it were her, she would continue taking Betaseron as patients have used it for SPMS. My layperson's opinion is that the autoimmunity does not completely disappear when past the relapsing phase of the disease so it could be an ounce of prevention type of thing. I had psoriasis in the back of my head before HiCy and that has returned although not quite as intense so I believe I am still autoimmune.
My vitamin D levels were very, very low and that has been corrected. I recently chatted via Facebook with a doctor who has had very stable MS for 15 years, has relied solely on diet and does not buy into the solely autoimmune theory of MS. That has caused me to be more interested in the diets but I haven't tried them. However, I have been a low fat vegetarian for almost as long as I can remember.
Good luck with whichever treatments you try. One HiCy patient on this board had a baby after HiCy, and she did it twice.
Me too. I am sorry to hear what has happened.
I have a lot of issues with my eyes as well (retina thinning seen on OCT) but no sign of optic neuritis when they look into my eyes they look normal. How did retinitis present itself? and were they able to see it by looking at the back of your eyes?
I have had MS since I was 17 but I was only diagnosed 2 years ago (aged 31). My eyes and sensory issues are my major probs. I still do relapse and will def look into Revimmune once I have had children. If not that I will look into campath and stemcells.
Is there nothing the dr's can give you now to help? Other than drugs have you tried fish oils, aspirin, Vit D, Zinc, LDN supps?? or any special diets (gluten/dairy/low fat)???
Thanks for sharing your story