Is cyclo really going to help?

A board to discuss Revimmune as a potential therapy for multiple sclerosis

Is cyclo really going to help?

Postby Grenaway10 » Sat Nov 05, 2011 8:30 pm

I'm 19 and I decided to do cyclo and I have been home for 4days and was in the hospital for 9 to do the cyclo, but I am already having a attack! So I am wondering if the cyclo is going to help can someone comment please? :sad:
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Re: Is cyclo really going to help?

Postby NHE » Sat Nov 05, 2011 11:21 pm

Grenaway10 wrote:I'm 19 and I decided to do cyclo and I have been home for 4days and was in the hospital for 9 to do the cyclo, but I am already having a attack! So I am wondering if the cyclo is going to help can someone comment please? :sad:


Welcome to ThisIsMS. I have no experience with cyclophosphamide. Hopefully, another member more familiar with cyclophophamide will reply. The Revimmune protocol is quite different from the standard low dose treatment if that's what you're doing. Revimmune is a high dose treatment over a period of 4 days that aims to kill off the immune system cells completely except for the stem cells in the bone marrow. This procedure is done in an attempt to "reboot" the immune system. Drugs are given after the chemo to stimulate the stem cells in the bone marrow to produce new immune cells.

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Re: Is cyclo really going to help?

Postby Grenaway10 » Sun Nov 06, 2011 2:23 am

I believe we are talking about the same thing. I was in the hospital for 9 days and received 6highdoses of chemo and was kept for a total of 9 days. I was told by my nero doctor that this could work, and that my m.s might not be so aggressive. I did the cyclo because I have known that I have had RRMS (now have SPMS) for 4years and in 4 years I have had at least 4 attacks a year and this year alone from sep-2010 -sep-2011. I had more than 10 new lesions in my brain. Like I am worried that my doctor has told me to do this chemo and my m.s is already too active and that this is not going to work I wish another specialist would tell me my doctor has given me the right treatment and that I am worried for nothing, because there are no other treatments out that I haven't tried.
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Re: Is cyclo really going to help?

Postby criptastic » Tue Nov 08, 2011 12:23 pm

Hi,

I don't have MS, but another autoimmune disease. I also had several exacerbations in the first few weeks/months following the HiCy. It is apparently not unusual, as the disease doesn't want to "go down without a fight." I have not had any flare ups since about March of last year, and one year ago right now I was in the hospital getting my treatment.

Hang in there. Feel free to contact me privately if you want to talk in more detail!!

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