123

A board to discuss Revimmune as a potential therapy for multiple sclerosis

Postby Lyon » Fri Dec 28, 2007 11:50 am

.
Last edited by Lyon on Wed Nov 30, 2011 6:22 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 2:00 pm

Advertisement

Postby Loobie » Fri Dec 28, 2007 3:08 pm

Congratulations Chris!,

I won't spooge on the board like Bob, but that's some good freakin' news!
User avatar
Loobie
Family Elder
 
Posts: 2196
Joined: Mon Sep 11, 2006 2:00 pm
Location: Dayton, Ohio USA

Postby chrishasms » Fri Dec 28, 2007 3:20 pm

123
Last edited by chrishasms on Sun Dec 06, 2009 1:09 pm, edited 1 time in total.
chrishasms
Family Elder
 
Posts: 1161
Joined: Thu Sep 14, 2006 2:00 pm

Postby Lyon » Fri Dec 28, 2007 5:04 pm

.
Last edited by Lyon on Wed Nov 30, 2011 6:20 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 2:00 pm

Postby chrishasms » Fri Dec 28, 2007 5:11 pm

123
Last edited by chrishasms on Sun Dec 06, 2009 1:09 pm, edited 1 time in total.
chrishasms
Family Elder
 
Posts: 1161
Joined: Thu Sep 14, 2006 2:00 pm

Postby Lyon » Fri Dec 28, 2007 5:22 pm

.
Last edited by Lyon on Wed Nov 30, 2011 6:20 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 2:00 pm

Postby HiCy » Mon Dec 31, 2007 8:53 am

Chris,

Good luck on the 9th! I am glad this is working out for you and JH has scheduled you for the initial appointment. If they give you the green light you will be starting before you know it. I started 30 days after my initial visit. Dr. Kerr and staff are a great group of doctors and they will be very helpful. Dr. Brodsky is the oncologist with the license on the process. Have they scheduled you to meet with him? If not it is not a big deal. I met with him for the first time the day before I started the treatment.

HiCy
User avatar
HiCy
Family Member
 
Posts: 64
Joined: Tue Oct 30, 2007 3:00 pm

Postby Lyon » Mon Dec 31, 2007 9:13 am

.
Last edited by Lyon on Wed Nov 30, 2011 6:10 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 2:00 pm

Postby chrishasms » Mon Dec 31, 2007 9:13 am

123
Last edited by chrishasms on Sun Dec 06, 2009 1:10 pm, edited 1 time in total.
chrishasms
Family Elder
 
Posts: 1161
Joined: Thu Sep 14, 2006 2:00 pm

Postby Lyon » Mon Dec 31, 2007 11:01 am

.
Last edited by Lyon on Wed Nov 30, 2011 6:09 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 2:00 pm

Postby HiCy » Wed Jan 02, 2008 8:50 am

Chris/Bob,

I am feeling ok. No real change in symptoms. Being anemic is a drag as it is taking a while for my red cell count to come back to normal. It is a waite and see game at this point.

In regards to the campath question and RR vs. SP or PP most of the patients who have gone through this were in a PP or SP state, me included. I would definitley say I was moving out of RR and that is why I tried this protocol. Some of the initial worst patients whom were most likely PP have not shown any further progression but very little recovery. The issues is really what damage is permanent, what is inflamation and what areas can experience a re-mylanation. Since you are starting with a new immune systom is really does not matter what state of the disease you are in. I am willing to bet that if this process hits the main stream that insurance will only be paying for people who have tried everything else and are not having any success. That was the boat I was in. I had been on everything including tysabri and was still having problems.

HiCy
User avatar
HiCy
Family Member
 
Posts: 64
Joined: Tue Oct 30, 2007 3:00 pm

Postby chrishasms » Thu Jan 03, 2008 6:44 am

123
Last edited by chrishasms on Sun Dec 06, 2009 1:10 pm, edited 1 time in total.
chrishasms
Family Elder
 
Posts: 1161
Joined: Thu Sep 14, 2006 2:00 pm

Postby Sharon » Thu Jan 03, 2008 7:06 am

Good Luck Chris - from one Denverite to another. It was good to hear that the vision problems are starting to subside a bit. I think that if you are able to get rid of the inflammation with this process, your body has a chance to repair itself. You may have axon damage which can't be repaired, but your body has the ability to repath neurons around the damage. This is not remyelination, just a new path using a healthier and un-inflamed nervous system.

I have my WalkAide - will post under the new forum section about my experiences.

Take care

Sharon
User avatar
Sharon
Family Elder
 
Posts: 1239
Joined: Sun Nov 07, 2004 3:00 pm
Location: Colorado

Postby chrishasms » Thu Jan 03, 2008 7:26 am

123
Last edited by chrishasms on Sun Dec 06, 2009 1:11 pm, edited 1 time in total.
chrishasms
Family Elder
 
Posts: 1161
Joined: Thu Sep 14, 2006 2:00 pm

Postby Lyon » Sat Jan 05, 2008 10:28 am

.
Last edited by Lyon on Wed Nov 30, 2011 5:27 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 2:00 pm

PreviousNext

Return to Revimmune (cyclophosphamide or cytoxan)

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service