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A board to discuss Revimmune as a potential therapy for multiple sclerosis

Postby chrishasms » Mon Jan 07, 2008 8:12 pm

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Postby Lyon » Mon Jan 07, 2008 8:15 pm

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Postby whyRwehere » Tue Jan 08, 2008 4:56 am

In the article Bob posted, it says no one improved more than 1 pt on the EDSS score. Is that so?
I'm following this story, although my husband is not interested in going through something like this. And since we don't have insurance in the US, and are not in the US, it would be impossible anyhow.
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Postby chrishasms » Tue Jan 08, 2008 7:25 am

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Postby MaggieMae » Tue Jan 08, 2008 7:36 am

All,

The Revimmune paper I read states "The principal investigator for the
ongoing Revimmune MS study at the Johns Hopkins University School of Medicine is Douglas Kerr, MD, PhD. In a follow-up of up to 2 years, most patients have shown substantial improvement and many have a complete elimination of signs of the disease."

It also states "Accentia is preparing an IND application for Revimmune for severe refractory MS, and is proposing to enter a Phase III clinical trial to support licensure under the abbreviated 505(b)(2) regulatory pathway"

I used the word clinical trial without realizing the difference between a study and a clinical trial. Is it a "study" that John Hopkins is currently conducting.
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Postby Lyon » Tue Jan 08, 2008 7:37 am

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Postby chrishasms » Tue Jan 08, 2008 7:44 am

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Postby whyRwehere » Tue Jan 08, 2008 7:49 am

Okay, thanks for the info...
And as for Baltimore, remember it's a city, and be careful!
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Postby chrishasms » Tue Jan 08, 2008 2:59 pm

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Postby Lyon » Tue Jan 08, 2008 3:26 pm

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Postby chrishasms » Tue Jan 08, 2008 3:39 pm

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Postby Lyon » Tue Jan 08, 2008 3:48 pm

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Postby Jamie » Tue Jan 08, 2008 4:19 pm

Chris,

Please allow me to introduce myself. My fiance was diagnosed with MS in August and has had two exacerbations since.

She's been on Rebif since September but the side effects keep getting worse and the efficacy is questionable at best.

We've been looking into the Revimmune treatment as an option alongside Tovaxin (we live in Houston although I am English and she is originally from Boston/New York).

I just wanted to say thank you for posting here and also to your wife for updating your journal for you if you become too ill.

Good luck mate, you deserve it.
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Postby chrishasms » Tue Jan 08, 2008 8:24 pm

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Postby Jamie » Wed Jan 09, 2008 10:32 am

Chris,

Are there any exclusions to the JHI treatment that you are aware of?

Also, I believe today is the big day, I hope it goes well.

Thanks,

Jamie.
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