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Board index » Treatments » Revimmune (cyclophosphamide or cytoxan)

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chrishasms
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PostPosted: Wed Nov 28, 2007 10:31 am 
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Last edited by chrishasms on Sun Dec 06, 2009 1:57 pm, edited 1 time in total.

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Loobie
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PostPosted: Wed Nov 28, 2007 10:47 am 
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Dude!,

Man keep us posted as I know you will. This sounds very promising and also very scary at the same time. I wish you all the luck in the world. This sounds pretty radical, but is also a giant departure from anything else that is being tried so what the hell! I guess I need to read this entire thread, but are you saying you are getting a "new" immune system? Well I'm picking myself up off the floor. If you are running again, I want the info! I miss running soooo much. Not much else for me to say except good luck again and you know we are all pulling for you.

Lew
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Loriyas
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PostPosted: Wed Nov 28, 2007 10:48 am 
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Oh Chris, how exciting for you. I wish you all the best. Please keep us posted as to how you are doing.

Best of luck!
Lori
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chrishasms
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PostPosted: Wed Nov 28, 2007 10:51 am 
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MaggieMae
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PostPosted: Wed Nov 28, 2007 11:14 am 
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Chris,

This is what I wanted to hear. I'm so excited for you. I hope everything goes great. When I read about this treatment and first mentioned it on the Tovaxin forum, I was hoping that someone who was involved in the treatment would post. Then came the posts from HiCy and now you will be able to tell us first-hand about your experiences.

It seems that you are so much more hopeful than you were in your previous comments about Revimmune. Apparently you have talked to someone personally at John Hopkins.

My husband said he would try anything rather than continue to go "downhill" with MS and I know others who are even worse off than my husband and they are ready to give up. So, keep us informed.
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chrishasms
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PostPosted: Wed Nov 28, 2007 12:27 pm 
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Last edited by chrishasms on Sun Dec 06, 2009 1:58 pm, edited 1 time in total.

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Rudi
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PostPosted: Wed Nov 28, 2007 12:42 pm 
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Wow this is very interesting. Good luck.

_________________
1st traceable symptoms July 2006 - realized I had MS November 2006
CAP since 27/04/2007. Various supplements and dietary modifications.
Male 27 UK
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flipflopper
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PostPosted: Thu Nov 29, 2007 11:40 am 
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I find this treatment interesting. If I don't have good results with Tovaxin, if I qualified for this trial and if a site opened near where I live, I would look into this study.


Best of luck to you Chris!
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Sharon
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PostPosted: Thu Nov 29, 2007 1:19 pm 
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Good luck Chris!

Quote:
Now for the real information you want to hear. The endpoint is to improve, so if you do not improve, you will definitely know the disease activity is done nevertheless. Everyone however is showing improvement. Everyone that my contact has seen.


I am curious - what is the improvement being shown? Does the improvement include repair to the nervous system?

Hopefully, you will have enough good days during your treatment that you can strap on your WalkAide and play tourist.

Take care,
Sharonl
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chrishasms
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Lyon
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PostPosted: Thu Nov 29, 2007 2:08 pm 
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Last edited by Lyon on Thu Dec 01, 2011 6:39 pm, edited 1 time in total.

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CureOrBust
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PostPosted: Fri Nov 30, 2007 12:31 am 
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chrishasms wrote:
This gets all the MRTC's. Not just the ones they know about.
Does this (& Tovaxin for that matter) only remove (to the current best of knowledge) stuff (i.e. MRTC's) from the blood (or items at any point in the peripheral blood stream)?
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Lyon
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chrishasms
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chrishasms
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Last edited by chrishasms on Sun Dec 06, 2009 1:59 pm, edited 1 time in total.

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