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A board to discuss Revimmune as a potential therapy for multiple sclerosis

1233

Postby chrishasms » Sun Jan 20, 2008 9:45 am

123
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Postby Jamie » Sun Jan 20, 2008 1:07 pm

That is fantastic!!!
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Postby Lyon » Sun Jan 20, 2008 7:00 pm

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Postby chrishasms » Mon Jan 21, 2008 6:51 am

123t.
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Postby gwa » Mon Jan 21, 2008 8:14 am

What is the Revimmune supposed to do?
When I read the blog, the thing that struck me is that I was much better at the end of 5 years than the first two years.

During that time frame I was put on ACTH for flares and nothing else. It seems to me that people who are RRMS tend to get better on their own anyway. So is the Revimmune really doing anything or is the better health due to the course of the disease?

Not slamming here, just curious.

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Postby chrishasms » Mon Jan 21, 2008 8:59 am

123
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Postby gwa » Mon Jan 21, 2008 9:58 am

I watched a video that bromley posted earlier this month that had a doctor from John Hopkins telling about this therapy, I believe.

He seemed excited about it. At the time I thought it sounded a lot like what bromley had done. His treatment was with Campath and he is much better now.

I don't remember if all patients are getting the therapy the JH doctor described or just the RRMS variety.

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Postby Lyon » Mon Jan 21, 2008 11:10 am

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Postby HiCy » Mon Jan 21, 2008 11:42 am

Bob,

Some of the first patients that underwent the Revimmune protocol were most likely SP or PP. They were able to stop the disease but they had very little improvement in conditions but at least they baselined and did not get any worse. There is most likely quite a few reasons why they are not taking more progressed patients at this time. I will not guess to what they are but I have a few ideas. I am sure those patients will be allowed the treatment in the future if ABPI gets this to the mainstream. I really would have considered myself more SP than RR. I was having small breaks between flare ups but my disability was increasing at a steady clip.

The thought behind the copaxone after the treatment is really quite experimental. WHen they were getting copaxone approved years ago they used it on mice before they were given the agent that brings on MS in rodents. The mice that were given the copaxone first never developed the MS.

I started back on copaxone about a month or so ago after my 3 month check up. Everyone at JH has been right on so far with this protocol so why start questioning their theories now.

Chris,

Have they given you the go ahead to set up housing in the Baltimore area? Let me know if you have any questions. We did quite a bit of searching.



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Postby Lyon » Mon Jan 21, 2008 12:37 pm

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Postby chrishasms » Mon Jan 21, 2008 2:48 pm

123
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Postby gwa » Mon Jan 21, 2008 7:57 pm

This sounds like a real exciting time for those of you that will be trying the procedure.

Best of luck to all of you and I hope it works well for you.

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Postby chrishasms » Tue Jan 22, 2008 8:42 am

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