Many neurologists are very conservative by nature. Mine said something similar like why go through this your not that bad. Well that is the point. To do it before you get that bad. Yes they have had one or two patients relapse. But they also have patients that are four-five years out with no activity. A treatment doesn't have to be 100% to say it is a viable treatment. I had this very discussion with Dr. Brodsky.
Say I put MS into remission for two,three,four years and it comes back but I recover some function. What next? There is nothing preventing me from doing the proceedure again. I think it would be a small price to go through all this again for a few years off from the disease. Another point is that there really isn't any data as to what form the MS might come back in. Will it be just RR because what I had was more progressive, so that would be an improvement to.
I also asked about all the MS drugs that don't work for me now. I have a new immune system so the old drugs could and should work better. There are so many more reason to give this a try than to sit on the sidelines and let the disease destroy your life.
And what is an FDA approval?? Cytoxan has been around for 40 years. The track record says it is safe. I don't need the FDA to say this works in X percentage of people. I say role the dice because it can't be any worse than were I was six month ago and the data is showing that it will probably be better. To say that I am not going to try this treatment because the MS might come back is like saying I am not going to use Chemo on cancer because it might come back.
I would really like to hear how your girlfriends neuro responds to these questions. Chances are he know very little about the proceedure. My Neuro is very up to date on treatment and was involved with some of the FDA tysabri trials. Once he did a little homework his response to all of the above questions was "why not give it a shot". If it is proven safe, which it is, then all of us have very little to loose in trying something different.