cyclophosphamide patients from Johns Hopkins

A board to discuss Revimmune as a potential therapy for multiple sclerosis

Postby chrishasms » Sun Feb 24, 2008 7:41 am

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Postby Lyon » Sun Feb 24, 2008 1:52 pm

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Postby Loobie » Sun Feb 24, 2008 2:50 pm

Believe me, if Tovaxin works, you will hear all about it from me. I have stabilized somewhat in the last few weeks, but I will know if something is working or not (I freakin' hope). Like Tim pointed out, we will probably notice nothing for the first two treatments. The third is the one that seems to 'tip the balance' over to the good side. With that being said and Revimmune seeming to work to some significant degree on everyone, I am going to be paying very close attention and will not hesitate to pull the trigger if after the third injection I have more progression.

When there seems to be something that is working, I can't allow myself to further the cause of science by getting worse. I mean there's only so much altruism left in me after this shitty ass year :lol: . But for real, I hope they both work great and people can have a viable choice about treatments that they don't have to keep their fingers crossed to hope they work. Being on a CRAB is a rather interesting deal. I mean you feel like you are doing SOMETHING actively, but then you read up on it and unless you are one of the lucky 29% you are sort of jabbing yourself and paying huge co-pays for nothing. And to top it off, you just really can't tell if it's working for you or not. I know that's heaping all the "bad" stuff on at once on something that exists where there was nothing before, but basically in terms of treatment, it just sucks to be us!
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Postby Lyon » Sun Feb 24, 2008 4:03 pm

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Postby chrishasms » Mon Feb 25, 2008 6:36 am

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Postby Lyon » Mon Feb 25, 2008 8:27 am

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Postby chrishasms » Mon Feb 25, 2008 10:11 am

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Postby Lyon » Mon Feb 25, 2008 10:41 am

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Postby chrishasms » Mon Feb 25, 2008 3:55 pm

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Postby Lyon » Mon Feb 25, 2008 4:35 pm

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Re: Quitting Smoking

Postby NHE » Mon Feb 25, 2008 11:30 pm

Hi Bob,
This might be helpful for you... Train your brain to think of cigarettes as an addictive poison, one which you used to ingest to hasten your death for the sole purpose of corporate profiteering. To a non-smoker, this line of reasoning makes them as nonintuitive as the thought of being addicted to rat poison.

Anyways, for some more encouragement towards your success in quitting smoking, you might want to check out the slide show on this page.

Note that the link to the slide show is directly under the two pictures.

By the way, I wish you and your wife the best of success with this endeavor. :wink:

NHE
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Postby Lyon » Tue Feb 26, 2008 7:40 am

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Postby cheerleader » Tue Feb 26, 2008 7:55 am

Dearest Bob-
best to you and your wife as you kick this habit!
My sister in law finally stopped smoking last year-
All it took was losing her husband, my 40 year old brother, to a massive stroke.
He was overweight, and a long time smoker,
and I'll bet if he knew he wouldn't see 41 years,
he would have quit.

not to be morose, or anything....but I hate cancer/stroke sticks.

and I like you and your wife!
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby cheerleader » Tue Feb 26, 2008 8:01 am

P.S. To Chris....
Congrats on quitting smoking,
and I'm cheering for you
as you head off to Johns Hopkins!!!!
now, back to our previously scheduled thread.
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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