COST ?

A board to discuss Revimmune as a potential therapy for multiple sclerosis

Postby chrishasms » Sun Apr 20, 2008 5:30 pm

It was those drugs that made me puke more!! lol Yes the drugs that were supposed to stop from barfing me made me feel worse lol.

It's a goooooood reason to break a record! I barely remember puking anyhow!--well the one in the atrium I do. I smelled the coffee and lost it. lol
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Postby Lyon » Sun Apr 20, 2008 5:31 pm

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Last edited by Lyon on Mon Nov 28, 2011 4:19 pm, edited 1 time in total.
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Postby Xenu » Sun Apr 20, 2008 5:35 pm

It was those drugs that made me puke more!! lol Yes the drugs that were supposed to stop from barfing me made me feel worse lol.


What drugs do they give you for nausea there?
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Postby chrishasms » Sun Apr 20, 2008 5:53 pm

They offered me drugs to help with the nausea I was having but they made me even more sick. The chemo sucked for me, but the meds to help didn't for me either. Most people are not me lol. Most have no issues at all lol.

I think it was called Adavant or something. They sent me home with the pills as well but when I was gone from the hospital I never took another.

I wish I would have just fought the nausea naturally and just barfed rather than throwing some meds in on top of it.

It was no different than the flu. None from what I remember. I was achy, tired, nauseous, and just felt crappy. It was heroin and drano to the vein. I just wish i would have "cowboyed up" and just did it minus the helper drugs.
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Postby Xenu » Sun Apr 20, 2008 6:03 pm

I have had food poisoning (for 3 weeks) and still not vomited. Cast iron stomach. But I imagine that if anything would make me pukey, chemo would do it.

I did almost heave the first time I got IV solumedrol. But then, instead, I passed out on the hospital bed and slept for 4 hours. Um...when I was supposed to be getting up and getting discharged.
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You must mean "Ativan" aka "Lorazepam"

Postby Xenu » Sun Apr 20, 2008 6:08 pm

I think it was called Adavant or something.


http://en.wikipedia.org/wiki/Lorazepam

I think I would do fine on this. I have taken other benzos for anxiety, including Xanax and Clonazepam.
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Postby chrishasms » Sun Apr 20, 2008 6:17 pm

Ahhhhhhhh both of those drugs were old friends of mine as well. Your tummy has nothing to do with it. You puke so hard it comes from your toes lol!

For me only too lol!
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Postby Xenu » Sun Apr 20, 2008 6:19 pm

Well, I can still not want to vomit while simultaneously stoically accepting that I will probably vomit.

But if I get approved, do the protocol, and never vomit, you owe me $50.00.

:P :P :P

;)
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How Long ?

Postby sandonpoint » Mon Apr 21, 2008 6:17 am

For you guys that have had the treatment, how long on average did it take from the time you picked up the phone , made the call to the time you had the needle jabbed in ur arm ?

peace out

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Postby chrishasms » Mon Apr 21, 2008 8:58 am

I called Nov 1st ish and started March 13th. It's moving quicker now. Insurances are getting used to seeing this I'm sure.

Also it's a Hickman central line. I have all the pics on my site. Drips right into your heart.
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Postby Xenu » Mon Apr 21, 2008 11:09 am

Chris,

I was told (by Dr. Hammond) that I could be in there within "2-3 months" (meaning June or July). So it's moving quicker, but not too much quicker. He told me that negotiating with the insurance company typically takes 4-6 weeks, although, based on the fact that my co. approved this procedure for user "HiCy" I would assume they might be quicker to approve this time...especially in light of what Jamie said regarding the legality issue (i.e. - once you approve one client...).
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Postby 777 » Mon Apr 21, 2008 11:29 am

When I talked to Dr. Hammond he said the same exact thing, maybe thats just standard. I thought it was because I just had a baby and they wanted to wait 3 months.

Still waiting to hear back from them what they decided, they had my records since last monday. :(
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Postby Xenu » Mon Apr 21, 2008 11:31 am

777,

I do think it's standard, but nothing to frown about. ;)

Look at it this way: they need to

a.) get our records
b.) look them over THOROUGHLY
c.) meet us in person and make sure we qualify (heart and lungs strong enough, active lesions, yadda yadda)
d.) get approval from our insurance companies (which by itself can take 4-6 weeks)
and then
e.) proceed with treatment

You wouldn't want them to do it fast.
Because instead they're doing it right.
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Postby 777 » Mon Apr 21, 2008 11:36 am

Thats what I was wondering, do they want us to go to baltimore first, run tests etc.. then for us to come back home and THEN back again? That's fine, but I would think those same tests could be all be run by our own physicans.

Oh well, not going to worry about it. Not even sure if I qualify.
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Postby Xenu » Mon Apr 21, 2008 11:38 am

I am pretty sure they want to run the tests themselves, given that they are the people who would be treating us. HiCy is a serious investment. There really is no "quickie" or "budget" version of the treatment----with good reason.
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