Davis wrote:As of May 6,2008 I will be at JHH for the HiCy treatment for MS.
My intention is to try and keep those interested informed of the procedure and my experience with the procedure.
At 7:15 am I went to JHH The email that I received prior to leaving Chicago was detailed and gave step by step instructions. First I signed in and was issued an orange card which one sweeps at specific stations. This tracks you through your appointments. My next appointment, at 8:00 am, was for a blood draw. They were on time. The blood draw was easy and took about 20 minutes. My next appointment was at 9:00 am with Dr. Brodsky. He explained the pros and cons and answered any questions. He spent as much time with me as was needed. He was easy to talk with and explained in detail any issue or question that was presented.
End of day one.
Today, day two of the procedure, I had two appointments. The orange card is swiped and a printout reminds you of what to do and when. My first appointment was with Dr. Hesdorffer. He is knowledgeable, warm and friendly. He answered all of my questions and added details and facts that apply only to MS patients taking cytoxan. He indicated for MS patients, for most of us, that the body responds quickly to the drug and reboots itself as per the information that all MS patients received. That was reassuring to hear.
My next appointment was at in patient out patient services (IPOP). Some information, wipes, and informational papers were given and gone over with me. However, while waiting to be called, Melissa was sitting next to me. I met Jamie as well. They are doing very well. She indicated that she feels things are on schedule and so far it is not that bad nor has she been that cytoxan sick.
Tomorrow I get the port and well be admitted for the first cytoxan infusion.
I will update after I return from the hospital.
I am back from the chemo treatment.
Thursday the line was put in. That was easily tolerated for me.
Thursday night was first dose of chemo.
All went well.
Same for Fri.. Sat., and Sun. Each dose takes about one hour.
Other drugs were given as well as hydration.
Blood and vital signs were taken often.
They weight you as well to make sure what is going in comes out
Staff was great. Everyone in the hospital was pleasant.
I was discharged Sunday at 6:15 pm.
I have prescriptions to fill and an appointment at IPOP at 11:00 am. today.
I tolerated the chemo with very few side effects. A very little nausea and loss of desire for food. Nothing else.
I returned from my first IPOP appointment.
Meet with a nurse she took my vitals, weight and drew blood.
At that point you have to wait for the blood test results.
Then you meet with your nurse coordinator. Then she writes any new prescriptions that are needed.
The entire process took about two hours.
Tomorrow I have the day off. My next appointment is on Wednesday.
At this point I have 24 hours left before the chemo drug is out of my system.
There is no improvement in my MS symptoms. Just wanted to let you know because that is what everyone wants to hear about.
I went to IPOP today. I had my weight, vitals and blood draw. My numbers that the nurse tracks are slowly falling. That is a good thing.
Some of my meds were adjusted.
Some of my MS symptoms are lessening but that happened on a daily basis before the HiCy. I will wait and see if this is temporary or permanent. My energy level is good and food is something that is still not very appealing., I have Thursday off, so on Friday they will decide what to do next based on my numbers.
I am confused, I thought we all have to go for a prelimary eval visit and then fly back home and then back for treatment?